Feeling really depressed

  • 20 replies
  • 77 subscribers
  • 545 views

I’ve just had a TURBT last week and I’m waiting for the biopsies. I have been feeling very depressed and low. This time last year I was working and full of life and now I’m on disability and in pain every day. I’m getting to the point where I don’t think I can go on living like this. I’m crying every day and it just feels like I’m being punished for something. I need some encouraging words from someone somewhere as I’m at the lowest point of my life. 

  • hi  and welcome to this friendly and supportive group although sorry to hear you are feeling low and in pain. The early days of uncertainty and not knowing what the future holds is usually the worst time and many of us have had these dark days. Firstly, be aware that bladder cancer can be treated effectively. The waiting for results doesn't help, but once results are in a plan will be put in place and you then have something positive to focus on. Are you getting any help with pain relief? best wishes.

    Best wishes to All,   rily.

    Community Champion Badge

    What is a Community Champion ?

  • Sorry to see your feeling low Dean it’s really tough in the early Days when your filled with all the thoughts and don’t know what’s happening next but as Rily has said once you get a better idea of what the situation is things do improve having the conversations with Consultants and Nurses help and of course you have got all us on the group who are going through it and understand completely don’t hesitate to put any concerns or questions to the group anything you talk about will be met with a considerate response 

    Ste 

  • Thanks for replying. I’m taking paracetamol which helps a little.  Just desperate to get back to my old self again 

  • Hi DeanS24,I’m so sorry you are in pain and feeling so low.Stick here with us and we will support you all we can.Once you get your results you will be on the road to treatment.Have you talked to anyone about the depression and pain ? Waiting for results is hard but it will become easier once you know what is happening.This is a supportive group and we are all here to help.Best wishes Jane 

  • Thank you. I take paracetamol which takes the edge off. I was seeing someone through talking therapies with the NHS but  it wasn’t helping and I had to fill in the long form before each session and the therapist seemed to be just looking stuff up on google. Not very helpful, I’m considering antidepressants but concerned about the side effects. Either way, just having someone to talk to helps

  • Dean I know exactly how you feel. It’s a real roller-coaster. However once you get some sort of treatment plan in place I think you will feel a bit better. It will give you something concrete to focus on. In the mean time keep talking to the fellow travellers on here - we all and to support. And remember, this disease is treatable. 

    Hugs Leo

  • A Nurse told me on  Thursday  after my 2nd TURBT  That Buscapan can be helpful how true that is I’m not sure as I’ve not had to take any as yet but have bought some in some of the other members of the forum may have used them and found them helpful they are helpful for Bladder Cramps I know that much 

  • Thanks, Leo. It’s good to have people to talk to on here, and on the Facebook groups. Lots of support which I really need right now 

  • Dear DeanS24, I hear your misery. Very sorry to hear the NHS talking therapy has been unhelpful, I have to say this has been my OH's experience too with several different ones over the years, so you are not alone. Just to mention, you can call the Macmillan helpline folk 8 til 8, seven days a week, the number is 0808 808 00 00. They will understand what you're going through. If it gets really bad overnight, please do call Samaritans, on 116123, it's what they are there for.

    Sending you a friendly virtual hug. Please stay in touch with the forum, they have been such a helpful caring bunch when I had a big upset in my life.

    best, Denby