Hi I’m new here and quite anxious about this whole experience. I had an Cystoscopy end of January after losing a fair amount of blood in urine and with no UTI infection. Was told that I had suspicious lesions on bladder wall and would need a TURBT where biopsies would be taken and removal of lesions. The urologist handed me the MacMillan Bladder Cancer booklet and TURBT info leaflet before I left! I’ve had a lot of lower back pain and pelvic pain for some time now that seems to get worse every day. Now my bladder feels like it’s burning inside and causing a lot of unbearable pain in lower right abdomen. Also passing first urine in morning smells like strong ammonia I keep drinking water and cranberry juice but doesn’t seem to help. I’ve been for my pre-assessment appt today was given a prescription for antibiotics in case of infection and was told I’m high priority for the op as I’m high risk and just need to keep my phone with me as I’m likely to soon get a call. But my CT scans aren’t until end of next week and not sure I can cope with the pain and burning feeling inside. It’s not painful passing urine it’s the discomfort of urine in bladder and directly afterwards. Has anyone else had so much pain prior to having the TURBT? I’m just getting anxious as my mother had bladder cancer and kidney removed.
It’s very hard to keep positive when you just don’t what your dealing with but I am finding reading some of the comments on this forum very helpful. I would be grateful for any advice you can give and thank you for reading this.
Hi Angelica23 and welcome to the group although sorry to hear you are in so much discomfort. The pain you are feeling is not uncommon. I had severe lower back pain but was relieved after my first TURBT. Now you have had your pre op, your procedure should follow and you will feel a lot better afterwards. The op itself is fairly straightforward in the great scheme of things. Often done in day surgery, but prepare for an overnight. You will get no information at your CT scan as it takes a week or so to be analysed. Once you have had your TURBT and scan, the results will then determine the next step. Worrying times for you and we all understand, but be aware bladder cancer can be treated successfully. Lots of experience here to answer any questions you may have. Best wishes.
Denby, I knew I’d read on here about the lemon barley, but I couldn’t remember who…. 
