Gross hematuria at end of life care

Thank you I’ve had another day of nurses in .. drs .. and running to hospital to get supplies as blocking all time so run out of Catheters  so a normal hectic day  but I wouldn’t want to be any where else  I do phone them  .. as I did today as I needed reassurance x 

Morning Tinks5, hope you were able to get a decent night's sleep after being so hectic yesterday? What you are dealing with is so tough. I had my dad living with me after a series of strokes and increasing dementia, and it was absolutely exhausting. You have two parents to care for, and I cant imagine how you are coping. Thank goodness for the fantastic homecare nurses. Hope you are able to get the odd hour to put your feet up and indulge in something nice be it rubbish tv or a big bar of chocolate? Sending you love Hx

I wish :( .. at moment things not good .. dad had blocked catheter again later in day after 2 hours trying get him going ended up at hospital .. only thing left was a surgical Catheter that got him   Going again so this last resort in that way .. they did his blood count and his red cell down to 2.4 .. and blood count down to 68 .. so the end is getting very close now :( didn’t get home from hospital till 6 this morning with him .. can’t do transfusions his heamaturria   is to bad for it to  help  so drained ..  got my brother to sit at mums while she slept till got back so still had her to see to by 9 am dads meds at 10 am .. and carry on ..  all I can say is thank the lord for morphine so he is comfortable  x. 

Tinks5, just be assured that although we don't all post all the time, there are loads of us out of here thinking of you as you support your parents. I hope it helps a little.

Denby

Oh Tinks5,I feel for you,what a tough time for you and your family.I’m usually a full time carer for my mother but she is currently in hospital.She doesn’t have cancer but I understand the exhaustion,the ringing around trying to get help,the endless trips to hospital in the middle of the night.I hope you can find a few minutes just for you,I know how hard it is,thinking of you all.Love Jane xx

Aww thank you .. this horrible time does make you feel alone as  the carer .. thank you every one for your kind words x 

Just a little note to say .. dad started deteriorating on Monday 4th and  passed away early hours Friday 8th jan 2021 .. I kept his wishes and was at home :( 6 weeks 5 days from diagnosis now all my focus  as to be my mum x thank you all for your support xx 

Oh .So sorry and saddened to hear this. My thoughts are with you and your family. Take care of mum, I am sure you will. Lots of Love.

I’m so so sorry to hear about your dad Tinks5,thinking of you and your family.Love Jane xx

Dear Tinks5, so sorry for your loss. And glad you were able to be there for him and for your Mum. And it is peace of mind for you to have been there. Not something everyone gets especially at the moment. Hope you are able to remember him in a way that gives you and Mum and other loved ones some sort of closure eventually. Thanks for letting us all know.

Denby