As some will know diagnosed with bladder cancer 2022 and had with succeesful three years of bcg treatment with no reoccurances. Get to January 26, lymph node on groin swells, CT scan shows suspious for cancer and today was told diagnosis of metastic carcinoma of urothelial origin which I think is very serious, so in shock. Got appt next Friday at Guys after an MDT meeting where they will discuss the findings. Has anyone else every had this type diagnosis. Can anyone help???
Hi Bumblebee49 . No personal experience but I can understand how worried you must be with something new showing up. The positive way to look at things is that it has been identified and your team are on the ball and will have a plan to deal with it. I hope all goes well. Best wishes.
Oh Bumblebee49 what a horrible shock that is to the system, it's totally understandable you are very frightened I think we all would be in the same boat in your shoes.
Again like Rily I can't offer any real words to help other than wishing you the most positive outcome as they hopefully deal with this, and it must be a terrible shock after 3 years of being clear for sure.
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Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
oh my dear BB, I wish I could take your fear away. Of course you are frightened and now having to wait to hear the next plan for treatment. I am sure you are still in shock when all had gone so well with the bcg. Like Rily says, they are on it and will have a plan to deal with it. please dont google and scare yourself with information that is likely to be wrong. Try and spend the next few days getting your head round needing some more treatment. Whatever it is , you will face it and get through it ,and we will be here to steady you through . You are a strong woman and we are here for you xx
Much love Angela x
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