Hi I'm writing as a carer for my partner who is now living with a nephrostomy bag, although this allows his to sleep without having to get up to go to the toilet, his issues are tube coming away fro the bag in the night, thankfully the district nurses can come although the wait standing can be up to 2 hours.
The DN attaching at change over without pointing it forward despite asking/reminding them.
The DN just stating the skin looks 'OK' despite my partner keep saying it feels to burn or is sore or is itchy, and what CAN he do. What option does he have, is there an option?
We've changed the spray in case it was an alergic reaction - and i know how they feel. He has requested the favoured type of bag, but ...
i now accopmpany him to his treatments and we usually have lunch together afterward, now that this is a a hospice nearer home. And credit to him he is keeping busy, active when not sleeping - during the day. But is there anything else those in same circumstances can recommend i can help him with. I've accepted that my chores and jobs are mounting up, but I know how to prioritise. And I choose not to invite anyone into the home, in case they get the wrong impression. Pity they haven't seen live at its raw stage, like i did in my youth when i accopmanied my father around the parish visiting the vulnerable.
And i've not had time to write or add to any posts, because... and then i forgot which one and have also been trying to navigate the mess of windows 11. I do wish Microsoft would leave things as they were and only add new things for those that want the gismo's. Soz for that digress.
But i'll sign off for now, and await the communities support, but thank you for reading and listening to my 'rant'/'plea... Yavapi
Hi Yavapi . Sorry to hear your partner is having problems with his bag. I've no experience of this but I am sure others will be along to help. I hope you can get it sorted soon. Best wishes.
