My dad is to advanced for any help it's all happened so quickly couldn't even do a full turbt operation to stop the gross heamaturia we have hospice at home all this in 6 weeks from first blood in sample .. I'm carer for both my parents .. all ask me for answers .. loads I need to ask but never get chance .. or time ... dad memory as got worse with this and he is forgetting he as cancer thank fully so trying to hide how poorly he is is so hard any body going threw this ... advanced bladder distant metastatic lungs and elsewhere
Tinks5, I'm so sorry to hear that you & your family are going through this. I can't be of much help, although my dad died from lung cancer many years ago, so I do have some understanding. All you can do is be there for your parents. There will always someone to support you here at Macmillan. Hopefully someone will be along shortly with more support for you & your family x
I’m so sorry to hear about your Dad Tinks5. My mum died of bladder cancer 29 years ago today as it happens and it is hard.
It’s good that you have got the hospice involved, hopefully they can keep him pain free. You could try ringing a McMillan nurse, they are very helpful and may be able to answer your questions. All you can do is support your parents as you are doing and get as much help as you can.
Hi Tinks5, such a hard time for your family. The hospice teams are brilliant so I hope you are getting lots of help and guidance about what to expect as the disease progresses. Your parents are so fortunate to have you to care for everybody. I'm sure it eases their anxieties just to have you around. Hope you are able to find time to look after yourself too in these dark days. Sending love x
We only got start of diagnosis on 23rd November and they decided to try the turbt so we have got tomorrow consultant phoning to finish it off as dad now to poorly to go in .. this week already had phone calls from Macmillion and hospice to start before got final diagnosis . Which ids scary .. they gave dad a blood transfusion just 9 days ago and his blood count went to 95 .. yesterday was down to 83 .. my mum bad health as I’ve had to look after her last few years but dad as just started deteriorating last 3/4 weeks
Dear Tinks5, maybe teaching granny to suck eggs but have you registered as a carer with your local Carers' Association/ If not please do. You can do it by phone and who knows what help they may have to offer. If you have already registered, have you updated them about your Dad?
Dad now as had his morphine increased to point he seems more comfortable .. but it’s the gross hematuria Thats hard .. even though having daily flushes we still having blockages and Cather fill changes in less that a couple of weeks being in .. anybody else have this problem
