Hi all
I am a male 44 from Essex it started I had been in hospital with Pneumonia and they couldn’t understand why my lungs had these red lumps they found some nodes in my chest wall and did a biopsy on them I went to see the doctor to be told there was cancer in my body but he didnt know we’re it was and I have to have more tests I had a Pet scan and every camera in every hole and a tumour was found in my bladder I went to see the doctor and was told it was now moved to my bones and glans they give me a full bone scan the other day and it only in two places at the moment at the tops of my leg one I had radiotherapy already as I was getting a lot of pain she also know has told me I got is really rare cancer and it the first time she would of dealt with it someone with my has come out she has asked a professor at the London college hospital to look at it and they called me and I got a appointment next week via video call I am also having the tumour removed next week so I started to feel a bit more positive then something we’ll happen like the hospice we’ll call to see what surport they could give I been told they can’t cure me and I feel to scared to ask if they have any idea about how long I may have I have three children all under 25 any advice on chemotherapy or anything else would great
Hi and a welcome to the group from me. Most of us here know what a cancer diagnosis feels like and we understand how you are feeling. The op to remove bladder tumours (TURBT) is usually straight forward and done in either day surgery or an overnight stay, possibly longer. I had 6 weeks of chemo. It is difficult to predict how people will react to the treatment as everyone is different. I was fortunate not to have any real problems, while others had nasty side effects. Most people are somewhere in the middle. It can be a long day with chemo, so wear comfortable clothes and take plenty of snacks and drinks and something to keep you occupied. Get some good quality mouthwash and use regularly to help prevent mouth sores. If you click on any member name or picture, you will see treatments people have had in their profiles. Best wishes.
