Im trying to find an online chat forum specifically for people having bladder removal that have had it/ or having it done Portsmouth QA
Ive looked at local to me but theres nothing forum wise that i can see. Or anyone on this site thats had it done at this hospital.
Thanksl6
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Hi CurlySue123
Unfortunately the online community doesn't have individual groups for different towns, hospitals and procedures but I had a look on google and thought you might be interested in this. Action Bladder Cancer UK has this page (link) with links to support groups all over the country. Although I think that the support groups normally meet face-to-face it does say that they have moved online during the pandemic. I think the nearest one to you is probably the Southampton group but you could get in touch with them and see if they're aware of anything more local.
I did type 'Portsmouth' into the search bar in this group but only found three previous posts and they're very old. You could have a look and see if what you want to know is in any of them.
If you've got a question specific to the Portsmouth QA you could give your CNS a call and she should be able to answer your questions. Alternatively, if it's to do with bladder removal, I'm sure there'll be plenty of people in this group who will be only too happy to share their experiences with you if you wanted to start a new post with your questions.
Wishing you all the best
x
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