Adenocarcinoma

Hi Paul and welcome to the community and our group. Many of us will understand how you are feeling at this time and so you should get lots of support here as you go through your treatment. I have had a look at your profile and see you have had a a turbt procedure to remove a tumour. Adenocarcinoma does seem to be a rare form of bladder cancer. I have had a scout through the archives of this forum and there has been little mention of it over the years. Several people here have had full cystectomies and I am sure they will be along to share experiences. Partial cystectomies are less common, but I believe they offer you a chance of retaining your bladder albeit at a reduced capacity. Any questions you may have, or if you just want to talk then click the reply button below. It is a scary time for you, and we have been there, but there are many of us here who have got through all different forms of bc successfully. Best wishes. 

Thanks Rily, 

Thanks for the support and replying to me it really is appreciated, 

At this time it’s an emotional rollercoaster and I’m just trying to process everything. What’s difficult at the moment is know what the plan is moving forward as it’s not been confirmed so is therefore the unknown to me. My hospital is consulting with Addenbrookes tomorrow so after that I should have a clearer plan.

Thanks again Rily.

Welcome Paul, I don't have the same kind of bc as you but I do know how it feels when bladder cancer is diagnosed....terrifying and totally confusing. Things do get clearer overtime. If your hospital is consulting with Addenbrookes that sounds like tip top best practice. In the NHS bladder cancer is always discussed by a multi-disciplinary team which means no rushed decisions in my experience. Fortunately there are many different treatments  Waiting to know what comes next can be the hardest part as we all know only too well. Were you introduced to a CNS? They can be a lifeline.Sending you love. x

Hi Paul,This is a very friendly and supportive group and I hope you will find it of help.We are all at different stages of treatment but there is a wealth of knowledge and experience here.Love and best wishes.Jane xx

Hi I'm a middle aged female who had clear cell adenocarcinoma in the bladder diagnosed in 2014. Due to the tumour filling the entire bladder & it was attached to my uterus wall, I had a RC, total hysterectomy, 49 lymph nodes removed, plus due endometriosis scarring, 6 inches off my intestines. Yes it did take a long time to recover & I've had to get use to my new way of being. But almost six yrs later I'm still here in remission, able to think & do for myself. I have had excellent support from Guys & At Thomas' hospitals & I'm sure you will get similar treatment at your local hospital!

Hi There,

Thank you to reply to my message. It’s really helpful to hear from someone who has had an Adenocarcinoma as since being diagnosed I’ve not been aware of anyone else having it.

can I ask where you found out more information on the type of cancer as when I’ve looked everything appears to be mostly American. It appears that I caught mine early as it was under 3cm and I’ve been told so far that the cancer has been removed but due to it being aggressive that they will most likely now want to remove the area where it grew. I should find out more tomorrow as that’s when my hospital is consulting with Addenbrookes. At the moment I’ve been told that it’s not in my lymph nodes as well.

I just struggling with the diagnosis emotionally at the moment. I called Macmillan Friday and found that really helpful.

Hey Paul 

I only found out about my diagnosis via my oncology consultant. Yes our cancer is very rare so not much information is available. Fortunately you may be able to have a neobladder built inside of you & not have a stoma like myself....