Nurses

Hi Deli1577. Good to know you have had a clear cystoscopy, but sorry to hear your nurses have put a downer on it. We know nurses have been under a lot of stress and pressure recently, but going by your earlier posts, it seems your nurses had a bit of an attitude even before lockdown. We know treatments have gradually started up again, so hopefully your treatment will resume soon. Best wishes.

Hi Deli,

II’m  so sorry you’ve had a bad experience with your nurses. I sometimes wonder if they realise how anxious people are with cancer, particularly in the present situation. The good news is that you recent Cystoscopy was clear.

Are you able to transfer to Stoke for your BCG treatment? It certainly sounds a much better set up.

As far as the nurse is concerned I wouldn’t hesitate in going back to PALS again, her attitude is just not acceptable.

Hope things get resolved very soon.

Best wishes Luce

Hi Deli, I would totally support Luce's suggestion that you ask if you can transfer to Stoke. The last thing you need when you are having treatment is nurses who bully. The experience can be so different. Although I don't enjoy the BCG side effects, my visits to the hospital and connection with the Urology nurses is a real bonus. I feel more able to express my concerns to them than to consultants who can be any one of about 6 team members who I never feel I get to know really. Most important is your CNS and if she isn't supporting you she isn't doing her job properly. I'd contact PALs too. Sending you congrats on a clear cystoscopy. xxx

Thanks everyone, I do feel particularly guilty for moaning with everything that’s going on at present and I know my own anxiety doesn’t help matters.

I really don’t know how I would go about asking to move away from those nurses and with me only having 3 sessions left I think it’s probably less trouble to grin and bear it. 
fingers crossed that will be the last lot. 

thank you all for being so kind xx

Edel x

Hi Deli

First of all congrats on the clear cysto!

I know exactly how you feel about awful nurse, she was my designated specialist nurse to begin with.  After being traumatised by my first TURBT I rang her for a bit if advice, it was Friday afternoon & she just said that if I had a problem to go to A&E.  Not a lot of good when you're in pain & need a friendly ear, so I made a point of avoiding her for the next 8 years.  Luckily I then got the best nurse in the world, until she retired.  Then nurse awful reared her ugly head again, but I thought I'd give her another chance.   She said that my treatment was expensive & I was costing the NHS a fortune, if it was a joke then I could accept it, but it wasn't.  I reported it to PALS after much discussion & thought, but she denied it so that was the end of that as it was my word against hers.  It made me think that if anything went wrong with my op in future would they all stick together & lie about that too, so I decided to cancel my op in March as I just didn't feel safe anymore.   Plus I'd had trouble with the last 3 op's & no one appeared to be taking any notice of me, so I asked my Dr to refer me  to another hospital.  Then Covid happened so I'm still waiting, but at least I know that I don't have to go back to that hospital again.  I must've been one of the few who wasn't in any rush to have my treatment.   There's some wonderful hospital staff, I know as they've treated me, unfortunately there are also those that specialise in awfulness.  Hope you get your treatment soon, & a decent nurse x