Living with bladder cancer

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To all who are struggling with bladder cancer. My husband and I have been through the mill, but it is important to have hope.

My husband had R/C 1 yr ago. He had already had prostate cancer- but after 5 years it had jumped. He is 80 in August, so I was very worried as to how it would affect him- and me. He could not have chemo as he had already been treated with radiotherapy. He was 5 dys in ICU and another 10dys on a ward. It is a huge op and on top of that he had to learn to cope with a stoma. Recovery period is at least 3mnths. He was doing extremely well when he was hit by problems and recurrent UTIs. After being hospitalised 4/5 times, they found he had 3 strictures In his illeat conduite. Now he has 2 stents which need changing every 3 mnths. At his age another major reconstruction would be too much.

HOWEVER- we manage! He is well. We live as normal a life as possible, travelling to France and Italy (where we have family) regularly!

Now we have Corona virus andthat is a big worry. He has low immune system so we will have to lie low and hope for the best!

I would like to say to all those going through something similar - it can be done! I am not a strong person and had never been in a hospital before (apart from having children). Strength comes when u love that person. Have faith- in anything. You will come through. Take it ONE DAY AT A TIME. You will come out the other side.

I realise I am v lucky. For the moment my husband is cancer free and not everyone has the same outcome. Stay with it and good luck!

Garviv over 5 years ago

You and your husband are truly inspirational. God bless you both. Stay well

Garviv

rily over 5 years ago in reply to Garviv

Hi Canevara44. Thanks for the input. Very reassuring for others. Keep your heads down till all this passes. Best wishes.

Best wishes to All, rily.

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Herothedog over 5 years ago

Wonderful words Canevara44, thank you for telling us your story. xxx

Wilbert over 5 years ago

Brilliant post to read so happy for you and your husband

Mr W and me in a similar situation altho he didn't have RC Twenty four bcg treatments over almost 4 years he is cancer.free and treatment finished Now on.6 monthly checks

Currently enjoying the sunshine in.Lanzarote.and he is looking forward to getting out on his bike when the UK weather improves His all clear after 21 treatments we decided needed a marking so we bought him an electric bike It actually cost more than my car which I remind him of whenever it suits

No need to say enjoy life as you are and we will take a leaf out of your book

Love

Wilbert xx

sueCC over 5 years ago in reply to Wilbert

That’s a lovely post Canevara44 you both are doing so well and I hope everything goes well for him. You’re right Coronavirus is a real worry at the moment , I’m not sure weather to stay in or just carry on as before, maybe a bit of both.

Wilbert, hope everything’s ok out there news news said they’ve cancelled all flight. Fingers crossed but enjoy x

Sue Xx

Wilbert over 5 years ago in reply to sueCC

We go into lock down on Monday have to stay in hotel but not much of a problem I have a sun lounger on the balcony.and plenty of books on my kindle I will miss the walk to the marina tho .

We have the elite package here with a nice lounge premium brand spirits and a separate dining room Hotel is on top of hygiene issues Its a bit of a bugger Pardon my language This was to be the first stress free holiday in almost 4 years No biopsy flexi rigid or consultant appointments However on a scale of 1 to 10 its probably 1.Have to say feel safer her with.3 cases than coming home to 1000plus

At moment Ryanair still.flying I admit I was concerned when out Thomas Cook flight was changed to them but couldn't fault them I had disinfectant wipes for tray tray seat area etc but they clean after vigorousl use

Stay safe

much love

Wilbert xx

rily over 5 years ago in reply to Wilbert

Hi Wilbert. Sorry to hear your holiday has been put in jeopardy and you are in lockdown. Make the most of your sunny balcony. Hoping all goes well for you. Stay safe. Best wishes.

Best wishes to All, rily.

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Herothedog over 5 years ago in reply to Wilbert

Hey Wilbert, rotten that your holiday is being affected by this bloomin' virus, though as you say life is better in sunshine on a balcony lounger than paddling through mud and driving rain which is my daily outing! Enjoy the premium brands x

Teasswill over 5 years ago in reply to Wilbert

Could be worse places to be in lockdown! But hope you get back home before you go stir crazy.....

Lots of events being cancelled in our village, but I'm just hoping the weather holds so I can do gardening instead!

Garviv over 5 years ago in reply to Wilbert

Hi Wilbert

Sorry about your isolation whilst on holiday. Hope you stay well

Garviv

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