Excess mucus

Can't advise re the adhesive, but maybe he can reduce the amount of mucous. See if it varies with diet - I find this can affect me. Extra fat/rich food can give me more mucous, or if fluid intake drops too much. The mucous will diminish with time, but doesn't completely go away.

Hello JennyJJ

Three years on, I still get blobs of thick mucus especially when I don't drink enough fluid (red wine doesn't count).

I use adaptor rings with my convex flange pouch as they make a good seal around my stoma, lessen the chance of leaks and adhesion failure plus protect the peristomal skin. I use Hollister adaptor rings, they're like a flexible ring of sticky toffee that can be stretched to stoma diameter.

CB

Also, I forgot to ask, is your husband using a drain bag at night?

CB

Thanks for your thoughts I will pass them on to hubby and yes he does use a night bag.

Hi

21/2 after treatment and I still get leaks. I can go weeks without leaks and then get two on same day, so don't worry. 

Concerning the mucus I still get large blobs and it usually means I've not been drinking enough water. It is common, but also getting a good seal on the stoma helps. You only need a little moisture and the seal can loosen.

In regards to confidence, when I was in hospital my bag use to leak every night and I thought, how can I manage this and a few weeks after my discharge I had so much tape and glue that I was more secure than Fort Knox.

It does take time and perseverance. Does your husband have a Stoma Nurse? I see mine once a year, but I also have her phone number if I need help or advice. The Urostomy Association are always good for practical tips. 

Keep posting if you need more help.

Couple of other points: I'm hairy so to improve adhesion to my skin, I shave around my stoma, very carefully, with a round tipped blades electric beard trimmer; also, I change my bag daily now, again, that reduces the risk of failure.

These days I get one failure a month at worst, usually when I'm gardening, bending a lot.

It's a process of elimination to find what works but he will get there.

CB

I’ve been fortunate leak wise as I’ve had very few.I have to be a bit careful in the area around my belly button as my stoma bag goes over it slightly.I had a couple of small leaks gardening but that was due to bending down,the stoma belt is helpful for support.I shall pay more attention to the mucus production.Love Jane xx

Just a tip on shaving. I use a tube, like an old toilet roll tube or an aerosol cap over the stoma as a guard to stop any nicks. Obviously, keep things santised, but it does help.

Hi

Have the same issue with leaks it that area and for the same reason.  Usually ok if I take time positioning the bag.  I also check my stoma size every now and then to make I get a good fit. I make a template out of the peel off back plates.

Hi Ianw,My cystectomy started off robotically but then there was a problem so I’ve ended up with a fetching abdominal scar as well.This has made it more awkward around the navel area.It’s been a bit trial and error but I’m more confident with the stoma now.It’s saved my life so I’m grateful.Love Jane