Hi,I had a post op ct scan on the 23rd January & have heard nothing since.Is it usual to get the results at the next urology appointment ? I’m not due to see the urologist till May.Love Jane xx
Hi Jane, do you have a CNS? I'd phone mine and ask. I bet if there was a problem they would have been in touch. Sending love x
Hi Jane, I’ve just seen your post. I’ve been on the receiving end of late results (although for sarcoma, not bladder cancer) several times and nothing is more irritating and stressful. The first thing you can do is chase the hospital whilst simultaneously asking your GP to shake them up a bit. Don’t be frightened of upsetting people - waiting five weeks for the result of a scan when you have cancer is simply not acceptable. Also, contact PALS and put in a complaint if you don’t get an immediate response.
Going forwards, at every scan appointment, you need to ask the question as to when you can expect your scan results, and make a note of it. We all have far too much to worry about dealing with this wretched disease without some muppet forgetting to contact us with the results of a scan that may be, quite literally, life changing.
Good luck and let us know how you get on.
Shackleton
Hi Jane. Just to echo the above. I have been in similar situations where my scheduled consultation was months after my scan. I called my CNS who gave me the results over the phone. Thankfully, nothing of any concern. Best wishes.
Hi,I’ve had no contact with my CNS since the day of diagnosis.She was asked to get in contact by Southmead & the stoma team but never did.At my last urology appt she came into the room for the last few minutes but said nothing even when I was shown out.I got fed up of just getting an answering machine when I did phone up.It’s disappointing but it shows how care and support can vary.I do have a lovely Macmillan agent though.Love Jane xx
I give it 3 weeks for my husbands kidney cancer scans to make sure its been to the MDT meeting then i start phoning up his CNS, in your case i think i would contact PALS about the CNS, unless i'm missing something about that.. Fingers crossed for good results X
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007