I had my letter come through for my rigid cyst last week, terrified already!
I've also put in a complaint about the hospital & the way that they treated me last time. Now I'm double scared to have the procedure in case they really get me this time for reporting them . I'm not usually a cowardly person, but I can't decide whether to ask the Dr to refer me to another hospital or brave it & take my chance again.
Hope everyone's doing as well as can be expected xxx
Hi Blanket,Sorry you are in a quandary about what to do.Would you have to travel far to be seen elsewhere ? You shouldn’t have to put up with bad treatment & well done for complaining.It’s tricky,perhaps just go for what will cause you the least amount of stress & worry.Love Jane xx
Hi Blanket, at least the appointment letter was sent efficiently I would be really surprised/shocked if the hospital was mean because you complained. Any decent professional would want to know if their service was getting it wrong. I worked in the public sector throughout my working life and we definitely felt that. Trust me we did get plenty of complaints because protocols don't always work for individuals, and that's how we learn to do better. But I seem to recall you didn't feel supported by your CNS since you moved to this hospital either?? If that's so and it's not inconvenient for travel, personally I would change hospitals. As us bladder lot are regulars or frequent flyers as my cystoscopy team call us, so we need to feel properly treated. Fingers crossed Blanket x
Whenever my clinic had Px booked in who were 'under care of PALS' (to do with a complaint re another section of the hosp), we made sure to treat them with kid gloves! I think hospitals do takes complaints seriously and you would not necessarily be identified to the staff member in question.
Hope all goes smoothly this time.
My take is always to take a calm but assertive companion along. Anyone low enough to try to 'get back' at you won't want to do so with a witness-even if your supporter is not allowed in theatre you know you can have them there in recovery, so that any account of misdeeds would be super-fresh in your memory! And they can't ban them from pre-op 'chats' with anaesthetist and surgeon so they will be delicately on warning.
Best, Denby
Hi All,
Hope everyone is ok.
Only just catching up with posts as my iPad has been playing up. I didn’t know someone could be with in recovery room etc. Certainly when I have a TURBT no visitors are allowed on the day ward even when being collected. Perhaps every hospital has different rules.
I feel for you Blanket, after a bad experience you loose trust in everyone. As you have previously complained I would have thought they would treat you better this time. Would you have to start again if you went to another hospital? A difficult decision!
Best wishes Luce x
Hi Blanket
I think it is awful that you are feeling like this. You should not have to be put through this.
If you do decide to stay with this hospital and you get the same treatment, write to your MP and/or local Councillor.
If you can get to another hospital, perhaps it would be better for your peace of mind. This whole thing is bang out of order
Inanna xx
That’s a hard one Blanket....to stay or go...I think I’d give them another chance to prove them selfs, I’m sure they wouldn’t take it to heart even if they did know you got in touch with PALS maybe they would be on the ball and treat you as you should be. Whatever way you go I’ve got everything crossed for you. X
Hi Herothedog
Oh yes a letter on time is a lot to be grateful for. Although I'm ashamed to admit that I was hoping that there'd be a bit of a hold up this time, especially when I've been spouting to so many people about the NHS before the general election. I do worry about becoming a serial complainer, although I could've complained over the years but didn't. My lovely CNS has retired, & I'm stuck with someone who doesn't appear to care. But I was very fortunate to have her, & I know that she won't come again. Thanks H x
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