Next step on the journey

Hi Inanna

It's quite normal to feel apprehensive and a bit blue before seeing a consultant because we focus on the negative. Stick to doing what you  enjoy best, sleep if you want to. If the sun comes out, go for a walk in it, I find that quite restorative most days.

CB

We're all familiar with those emotions. Vent away, that's one of the reasons for this forum. Sounds like you have a good attitude for coping, do whatever pleases you for distraction.

I had many sleepless nights listening to podcasts. Once you have a treatment plan you will ahve something to focus on. Good wishes for Friday.

Hi Inanna,I'm sorry you are feeling low.You have been waiting so long now it's not suprising that things are getting you down.I'm sure the situation will improve once you see the consultant.The waiting is awful and the mind goes into overdrive.Once a plan is in place though I think you will find that you will feel more settled to get on with the next stage.It is all scary but not knowing is the worst.I'm glad you are taking your sister with you,mine has been a tremendous support,another pair of ears is invaluable.We are all here for you,lots of love Jane XX

Thank you for your support and you are right, I know I will see things in a different light when I know more. Just had a little kip, now got a good book to read and feel better for your replies 

Love Inanna 

The waiting is the worst and you've had more than your fair share. You've been given bits and pieces of information but with no joined-up thinking. Also no personal CNS yet I think? You've been incredibly patient. Hopefully on Friday things will become clearer and less stressful. Feeling low from time to time is par for our course and this is the place to let it out. When I've felt most edgy (usually just prior to the next cystoscopy) I flop on the sofa with a couple of dogs' heads on my lap and devote myself to television. I've been known to watch 5 hour long episodes of some distracting rubbish over a day. It's amazing how time flies past. I generally have a strong work ethic so it feels really really naughty to be so dissolute but I need pure escapism. Add to that plenty of cups of tea and as many biscuits as I fancy. Little things. Sending love  xxx 

Thank you H I am the same I shut the nagging voice down that tells me I should be out and about and like you it is the TV and a cuddle with my cats. Whilst I am looking forward to seeing the Consultant I am totally dreading it but there is TV and some M&S food to get through first.  Sticky Toffee Pud and Custard my absolute fave

Love Inanna 

perfect x

Will be thinking of you this week Inanna you will be in all our thoughts for Friday .All the best harry xx

Harry thank you so much

Love Inanna 

So sorry you are feeling so low but yes once there is some sort of plan I am sure things will become a little bit easier good luck for Friday I will be thinking of you x