Bladder has squatters

Hi Inanna and welcome to the group. I am sure you will find this a friendly and supportive place with lots of information. Many of us have been through this and there is a wide variety of experiences here. Great to see you are trying to keep a sense of humour with Bill and Ben (happy days). I always found a sense of humour helped, especially with all the indignities they put us through. Can I ask how you were diagnosed? The scans are fairly standard procedure in order to rule anything else out and give them a bigger picture of what they are dealing with. Early days for you yet, but as I mentioned, many of us have been there and come out the other side. Feel free to ask any questions, or just have a moan if you feel like it. Best wishes.

Hi rily

Thank you so much for this lovely response.

I had a sonographer (hope that is correct, lots of new medical words for me to learn lol). I then had the camera rummaging around and on Thursday will be having a CT and MRI

I can't tell how grateful I am to have this forum.  I am blessed with a wonderful family and friends but they cannot give me the info like you can, also I don't want Bill and Ben taking over the conversation.

I feel uplifted because of this Group

Thank you so much xx

Hi Inanna. That sounds like pretty much standard procedure. Good to know that you chased things up. We know that many GPs ignore the symptoms and repeatedly prescribe anti biotics. The earlier these things are found, the easier to deal with. You will probably know the next step is usually a TURBT (trans urethral resection of bladder tumour). It sounds a lot worse than it is. Done under GA and the nasties will be removed. A biopsy will determine what the next step is, if any. I am sure you have done what most of us have and that is to search Google. Be aware that there is a lot of out of date and wrong information out there.

I was always fairly open with family and friends regarding treatment etc., but there were always worrying thoughts which I did not want to share. That's where this place helps. You can offload here to people who understand. Best wishes.

My doctor is red hot Riley, there was no mucking about, he is a fab doctor.

A TURBT is the next step.  I will be asking some questions when I get a date.

I agree with what you say about family and friends

Kind Regards

Hello Inanna, sorry you have needed to join us but you are very welcome. You have been sooo lucky with your doctor, my GP practice ignored my concerns for 3 years! Like Rily says the sooner the better. After your TURBT they will tell you the grade and stage of your tumours, and also what the team thinks will be the best way forward. At that feedback meeting, If you are under NHS, you should get to meet your Clinical Nurse Specialist (CNS) who if you are lucky can become your best friend in terms of smoothing appointments, explaining treatments. Mine is fab. This group will always be ready to listen. I totally agree with Rily, I have been completely factual honest with my friends and family but I don't always share my fears with them. This group is a marvellous support for that, we never get bored with hearing treatment stories  and we laugh quite a lot too! Hopefully Bill and Ben will soon be a distant memory. x

Hi Inanna,Welcome,I hope that you will find lots of support and advice here.Best wishes for your forthcoming scans.Love Jane X

Hi Herothedog, thank you for your lovely response.  Already this Group has made me feel   better

I think that the way you have been treated is disgusting, I so hope that you make a full recovery in spite of your doctor.

So glad this forum exists and the kindness shown to me since I joined yesterday has been wonderful. x

Thank you Jane, this group has made me feel much better x I am so grateful x 

Hi,It's good to know that you are feeling better since joining the board.I've only been a member since the summer but the advice I got regarding my recent operation and all the support has been fantastic.Keep posting,there is bound to be someone here with the experience to answer any questions/worries.Love Jane X

Hi Inanna,

As other have said this is a very supportive group.  Feel  free to ask anything, no matter how trivial you may think it is. We’ve all been there and know what a worrying time it is.

Good luck with your scans and your TURBT which I am sure will happen very soon.

Luce x