One thing I learned during my diagnosis and treatment period was to keep a record of appointments and a file of follow up letters. This gave me a history of events to refer back to and helped me manage my meetings with consultants and nurses.
You do have to manage your progress rather than allow the NHS admin machine to do that for you. The NHS admits its admin system is poor and patients get missed.
I'm on annual checks now and my consultant appointment is booked 11 months in advance but I still have to chase up an appointment for a CT scan 4 weeks before I see him. It's not joined up.
Good luck!
CB
I may appear to be listening but in my head I'm all at sea.
Hi just to add something to Crustybladder's advice on keeping a record there is this available to you free of charge the Macmillan organiser which is a very useful item to have
It's currently out of stock but fresh supplies will be available around the 22nd if you want to keep checking on the link and get in quick to get your copy.
Ian
By clicking on the green text above will open up a new page for the and give you information on the Macmillan organiser and how to order it.
