Exhausting

Hi . It does tend to catch up with you after a while. Endless rounds of appointments and treatment. At one point, I had so many things on the go I had to put a wall chart up. The anxious waits for appointments do not help. It does get better. The sunshine at the moment lifts our spirits so try and enjoy the day. Best wishes. 

Hi Catcatcat

I've just posted, thought I'd posted on the wrong thread, deleted, then realised that I hadn't 

So sorry to hear that you're feeling like this, it's the norm I think.  They call it cancer fatigue, you're doing really well considering you have 3 kids & a job!  I'm exhausted without any of that.  On a more positive note, the lows are almost worth the highs, & it wont always be this way, hopefully.

We're all here to listen, take care xxx

Thanks both!

Think I'm just feeling like I can't keep up with the other mums at the moment!  But to be honest my kids have had the most wonderful time playing at home, they were still playing in their home made dens in the garden at 8pm last night! 

I've had a shower, will grab my secateurs and get out in the garden.  Husband has taken kids shopping for my birthday presents.

Deep down I'm terrified about my next set results though...

Catcatcat xx

Catcat I think you sound like Superwoman! No wonder you feel exhausted. I followed a similar regime from Oct 2017, and I am still having BCG maintenance. I felt bone weary and vulnerable off and on first few months and that's me... retired from work, no young children, living in stress-free peace of countryside! Look at what you are holding together...respect.x  As I understand it our immune systems are on constant duty fighting BCG, and hopefully any cancer. Place another stress on my system, physical or mental and I flag. Tired soo tired! I notice my mood gets low, depressed. Now getting doses 6 monthly, in-between time longer, feel stronger and more upbeat. There will be other days for the beach, it's good for kids to just hang out at home and play with cardboard boxes and masking tape and a rested mum! Sending love xxx

Thank you Herothedog Good to hear I'm not the only one!  And reading your profile fills me with hope.

I'm in the thick of it at age 41, my CNS says I'm her 2nd youngest patient.  I've got two children at junior school, doing school runs, after school clubs, Beaver/Scout runs and working part-time.  On my days off I look after my 2.5yr old lol

Maybe shouldn't be so hard on myself!  So glad I posted.

Thank you All xx

Wow you are absolutely  amazing Please give yourself credit for how brilliantly you are coping and yes it's ok to feel down

I am filled with admiration for you 

In awe

Sending love 

Wilbert xx

Aww you lovely lot!

Thank you so much, really appreciate all your kind and encouraging words.

You've lifted my spirits

Just wanted to send you a hug Catcatcat. You are doing amazing coping with a young family, job and your treatment.

Hope you get a good result next week.

Luce x

Do you by any chance have a birthday Catx3?  I do hope I’ve not missed it!   Happy Birthday   xxx

Because there's nothing to show on the outside, I think we all underestimate the impact of things going on inside! As with many conditions, if people can't see anything wrong with you, they tend to forget.

You're doing brilliantly carrying on as Mum etc. Try to make sure to build some time for yourself into the schedule - don't be afraid to make it known if you need a break. Hope next results good.