Women with bladder cancer

Hi MaryQ,

i think you will find there are a lot of women on this site with bladder cancer. I was diagnosed in June 17, non invasive ptaG2 which of course is different from yours.

i was told I had a 70% chance of reoccurrence and unfortunately that has proved more than accurate. I was clear for the first 12 months but have had 3 reoccurrences in the last 10 months- next TURBT on 5th April. I am hoping that they will give me some further treatment this time to prevent it happening so often. 

Apart from my initial symptoms I haven’t had any symptoms since so it’s always a worry when you have check ups.

i am sure others will respond who have your particular CIS and be able  to reassure you.

The good thing is that in most cases it is a very curable cancer.

Best wishes x

Hi Lucylaw

Thank you for your reply, it really does help to know there are others out there going through stuff...But I am sorry you have had to have TURBT so many times.  My consultant said that as this is a flexible cystoscopy that they would bring me back in if there is anything suspect going on.  

Good luck next week

Warm wishes x

Hi Mary and welcome, as Lucy says there’s many of us lady’s on here with bladder cancer and I’m sure some will be along soon. I’ve had BC since 2012, not CIS but high grade, pta G3. I’ve not had a recurrence (fingers crossed) I think we all worry about our flexi scopes  or check ups of any kind but with having  the check ups means if anything showed up hopefully their on top of it pretty dam fast. I have flexi scopes every six months at the moment, I think soon it’ll go to yearly, that’ll be a bit scary but any problems your CNS should always be there for you. Well that’s the idea anyhow. Please try not to over worry and I’m pleased the breast cancer is in the past x

Good luck for the 5th Lucy x

What were initial symptoms for u?

Hi Jab

I am not sure if that question was for me!  But mine was found in a strange way...I had been diagnosed with a very large ovarian cyst [with masses of symptoms] and waiting for surgery, when I went into retention and it was the gynae who decided to do a rigid cystoscopy to see what was going on.  It was a huge shock when he told me they had done a biopsy and cauterised a 'suspicious' area and then sent a letter giving the cancer diagnosis and transferring me to urology.

I then had the surgery to remove the ovarian cyst and so felt a bit battered, what with in-dwelling catheters for many weeks and suchlike. Fingers crossed the retention has just become a residual so catheter free at the moment.

Warm wishes x

Another female here. My diagnosis came via gynae too - referred for what I thought was post menopausal bleeding but ultrasound showed otherwise. Mine was superficial but high grade (pTaG3) so needed more aggressive treatment. Even low grade is highly likely to recur so you will have regular checks.

My brother had low grade BC with several recurrences over a few years, but was eventually clear for long enough to be discharged.

BC is often regarded as  'an old man's disease' there seem a remarkable number of young women (& young men) diagnosed too. Fortunately it is very treatable if caught early.

Hi Mary, I am new to this site,  I am from the US.  I have been diagnosed the same as you last October.  I have had breast cancer in 2010,  and was shocked to find out I had bladder cancer.  I had my Turbt, and just had my second scope after Turbt.  Everything was good.  Having had breast cancer I had a lot of questions for the Doctor to see if they were related in any way; he said not.  I had blood in my Urine-two times.  Enough to contact the Doctor.  I thought I had a UTI.  I was shocked,

I don’t know that I will need to be scoped every 3 months for maybe two years. I always will wonder if it will come back.  Still trying to understand it.

Hi Mary, I am new to this site,  I am from the US.  I have been diagnosed the same as you last October.  I have had breast cancer in 2010,  and was shocked to find out I had bladder cancer.  I had my Turbt, and just had my second scope after Turbt.  Everything was good.  Having had breast cancer I had a lot of questions for the Doctor to see if they were related in any way; he said not.  I had blood in my Urine-two times.  Enough to contact the Doctor.  I thought I had a UTI.  I was shocked,

I don’t know that I will need to be scoped every 3 months for maybe two years. I always will wonder if it will come back.  Still trying to understand it.

Thanks Mary x

Thanks Sue x