New to it all

Hi and welcome to the group. Good to know they have finally found the possible cause of your problems and action is being taken. Now the waiting for biopsy results and we know this can be an anxious time. You are right to keep away from google. Lots of scary and unreliable info out there. When you know the results, we should be able to help you along. There is a lot of experience here with answers to any questions you may have, so stick with us for support. Best wishes.

Thanks rily, my “now this” name is because I have so many health issues in my family at the moment and this was nearly one thing too much, but I’m glad I found my way here and you seem a friendly bunch and I’m sure with your support I’ll get through this too.

I’ll post again when I know what I’m truly dealing with.

Well things seem to have stalled a little ..

i received a phone call from the hospital asking me why I hadn’t attended my cystoscopy ...????

i told her Id had it done last week and was now waiting to be called in to have it under general anaesthetic to remove the growth and analyse it..

she said sorry, it’s a misunderstanding and has gone off to chase it up.

However I am left on the verge of tears, I had been holding it together but now my confidence has gone....

Well things seem to have stalled a little ..

i received a phone call from the hospital asking me why I hadn’t attended my cystoscopy ...????

i told her Id had it done last week and was now waiting to be called in to have it under general anaesthetic to remove the growth and analyse it..

she said sorry, it’s a misunderstanding and has gone off to chase it up.

However I am left on the verge of tears, I had been holding it together but now my confidence has gone....

Sorry about duplicate post x

Hi . One thing many of have learned over the years is that although we get great treatment on the NHS, the admin side of things does seem to get a bit muddled, especially with appointments. Give it a few days to see if you get your appointment through, and if not give them a ring to chase it up. You are likely to be called for a pre op assessment first. This is fairly routine to check your general health before the op. The waiting is always the worst and the anxiety builds up. Something we have to learn to deal with. Try and keep yourself busy, although it may be hard. You are in the system and although things tend to move slowly, we get there in the end. Keep your chin up. Best wishes.

And to add to what Rily says if you haven’t heard anything thing in a few days give them a phone call, don’t just sit and wait. I’ve been on the phone for the last few days and I did manage to get some answers. Good luck xx

I know this is the case, I and my family have had mix ups many times before.

I just expected that today’s phone call was to give me my next appointment and instead I was asked why I hadnt attended the last one ?

We are at the moment struggling with getting to the bottom of some health issues with my husband and I think I was just bottling up my own worries and the frustrations of this let the bubbles seep out.

Thanks for your support Rily.

Thanks Sue

i will chase it up when I’m back in the right frame of mind.

ive just been reading and catching up on a few previous posts.

I’m glad to see your recent tests have been clear, hope your husband is doing well too. xx

Thanks for all your support.

My GP chased it up for me and I have now had my rigid cystoscopy. The growth was tiny thanks to being found incidentally and hence so early.

It was removed there and then and now just the wait for results of the biopsy to determine the timeframe for follow up.

Did I say “just”