Hi everyone - I’ve been lurking for a while as it’s been raw but feeling brave today. I was unwell (being sick, strong urine and generally feeling unwell) back in March 2023 - after trying to get a GP appointment and failing I called 111 - they sent me...
Husband has just been confirmed to have terminal cancer - hilar cholangiocarcinoma. What do I do?
Hello all My father has sadly recently been diagnosed with bile duct cancer as primary but has spread to the lymph nodes in his abdomen. I’m still struggling a bit in getting my head round this, my dad has lost an awful amount of weight, I struggle...
Hello I am Rsandfg and this is the first time that I have posted here, or pretty much anywhere. I am rapidly approaching my 81st birthday and if I hadn’t had the diagnosis I would say that there is nothing wrong with me other than ageing. Is this...
Hello. I was hoping someone would be able to help me. My dad has been diagnosed with cholangiocarcinoma. We are seeing gastroenterologist consultant next week and wanted to know what this would involve. Would we get any feedback on stage or prognosis...
Received diagnosis on 25 September had stent fitted a week later which led to me getting pancreatitis. Since then it’s been a rollercoaster ride. Was due to have whipple procedure in October but pre op scan showed growth to close to major blood vessel...
I'd been having pain in peritoneal for 12 weeks . Had various scans ,biopsy etc . Iv been told stage four ,no cure . I'm gutted,im seeing oncologist in 3 weeks to discuss way forward. ??? Can anyone give me a clue ?
Diagnosed in Feb 23, bile duct cancer, in liver, spread to abdominal cavity, lymph nodes and outside lungs!!! Palliative chemo, anyone going through the same?? I feel completely lost and totally alone, very little to no support whatsoever, Help!!
My husband was operated on Dec 2021. Everything that could go wrong did. 2 months in hospital. Discharged with bile bag. Successful chemo. However has developed Bile Acid Malabsorbortion. He is in a depressed state (in his 80s so has done well). His cancer...
Hola ,just been diagnosed in Spain I not fluent in Spanish by any stretch of my imagination so I’m sure some points are getting lost in translation Have tell tale jaundice, itching and dark urine but no discomfort billyrubina/bile level 17 malaga...
