What happens now?

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Hello. I was hoping someone would be able to help me. My dad has been diagnosed with cholangiocarcinoma. We are seeing gastroenterologist consultant next week and wanted to know what this would involve. Would we get any feedback on stage or prognosis from them? 
Thankyou for reading 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read that your dad has recently been diagnosed with cholangiocarcinoma and I know what a difficult time this will be for you both.

    I'm not a member of this group, so don't have any personal experience with bile duct cancer, but I noticed that you post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be easier to spot.

    You may have already read this but, if not, this is the information from Macmillan about the diagnosis and treatment of bile duct cancer. I'm not sure from your post if your dad has already had any scans, biopsies, etc that are needed by the consultant to help which treatment decisions or if this is the first time he'll be meeting his consultant. Hopefully you'll both know a lot more after the appointment.

    While you're waiting for replies, it would be great if you could pop something about your dad's diagnosis into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hello Tryingtobestrong39

    I think that when you go to see the consultant next week what might happen will depend on where in the bile duct the cancer is and whether it is contained in the bile duct exclusively. Has your dad had any scans or biopsies yet. These may well determine what treatments are suitable and or surgery.

     I was78 when I was diagnosed and had surgery called a Whipples resection. I’m sure, if you haven’t already looked it up you will.

    Three years on and I’m still going strong.

    One most important thing I will say it is vitally important that your dad gets as fit as he possibly can, particularly if he has to have surgery. Exercise, exercise, exercise.

     I hope this helps.