Hi everyone . I am pleased to announce that yesterday I finished my treatments
I'm over the blinking moon. I didn't ring THE bell but I said I'd sneak in and swing on it like quasimodo when I get the 'all clear'. Although I've hit a major milestone and I am truly elated boy oh boy am I suffering! All of my 'undercarriage' feels like it's been ran over by a truck and then blow torched and was told yesterday that it will get much worse over the next 10 - 14 days! I'm now bedridden on morphine every 2 hours plus paracetamol, ibuprofen and flamazine mixed 50/50 with cathejell on the rare occasions that I am actually awake which is only to do my John Wayne walking impression to the loo followed by sounds of a tortured 1970s horror movie victim. My nurse told me that sleeping a lot isn't a bad thing but to put alarms into my phone so that I'm drinking and eating as I get very dehydrated. I was given polymem dressings for my groin area (knicker elastic area) but I can't remember if I put the cream on first (morphine brain). Does anyone here have asthma and did the treatment make it worse? Today I am going to try and stay awake long enough to read some of my detective book, it's about a serial killer so that should cheer me up lol. Xxx
Hi Moira, oh, I'm definitely more emotional or at least I show my emotions more it's a bit difficult not to when our faces are almost always contorted in pain! I bought one of those portable bidets reccomend by the other girls and it is a Godsend. Just like a toddler's training potty, filled up with cool tap water place it on top of the toilet seat and sit in it to wee or even just for a soothing moment. It has 'overflow' holes at the back so it overflows into the toilet rather than the floor. My nurse had put me forward for a phone call from a councillor and she will be calling me next week as I do keep a lot of worries bottled up and I do worry about the what-ifs so as the future holds a lot of; what-ifs I think it's worth a try. My husband reported to me on returning home from night shift this morning how he'd been telling the lads at work he thinks I must be feeling a bit better as I'm starting to shout at him again and when I start swearing he's going to be able to stop worryng so much ...cheeky @#**#%!! Keep letting me know how you are getting on xxx Marie
Hi Marie,
Quick question, how much did you pay for your bidet? The ones I've found are cheap enough but the post and packing double the price!
I tend to keep everything bottled up too then I explode, usually at my husband! He's used to my volotile nature, after 53 years, he should be, but I really am terrible just now! And the 'what ifs' I suppose it's natural but really, What If ?
Dying to go for a wee, bet you hear the yell! We'd make great cussing team!
Love Moira
Hi my dear, I swear like a blinking trooper Haha but I'm very good in public and work... well, except for the one liners and there's nothing I can do about them . I got my bidet on Amazon I think it was £16 not the cheapest but it has those overflows and they are needed I think. It had free delivery which the cheapest didn't. Believe me I couldn't do without it now and if I had to fill a bath I'd definitely not be able to hold my wee for that long. I'll have a look at my orders to find out a bit more about the one I bought for you. You can also see if the chat with a councillor is available at your hospital! It might not be for you or me but!!! Anyway I'm going to have a look on Amazon now for you xxx M
Hi again Marie,
Thanks for the link, I might just show it to my lovely daughter-in-law when they Skype today! They always say if there's anything at all I need, to let them know! I think they feel a bit useless being in America, silly pair!
I don't know if I'd actually talk to a councillor but I'll make enquiries!
Thanks for all your help,
Love Moira
Hi Marie,
What a long, painful 12 days it's been, but I think at last, the skin is starting to heal! I thought I'd be feeling a bit better in myself though by now, I'm still tired and weak, and, of course, thinking ' What If'? I'm going to give myself a virtual kick up the bum and try to be more positive! Thanks for caring Marie,
Love Moira x
Three Good to hear that your skin is healing. Naturally you’re tired & weak & a bit paranoid after all you’ve been through.
The tricky bit now is to find a balance between resting enough to heal & being active enough to get your energy back. I don’t believe anyone keeps perfect balance on this tightrope so please be nice to yourself if you go too far one way or the other x Toni
Oh gosh, I peaked on my 9th and 10th days, it was dreadful, I just took the full amount of paracetamol and had morphine gel on a couple of days, and used the membrane which was very good. With polymem you dont use any creams. The crack in my bum is last to heal on my outside and I used calendula cream on the larger area and medihoney wound cream in the deep crack. I am now 3 weeks after treatment, and yesterday I rode my bicycle 2 miles ! I am using calendula pessaries in my bum and vag. Both are still sore inside but easing off. I am just about on top of the urge, it is better than it was.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007