Hi everyone. Here's my somewhat belated update, which I thought I'd do over the weekend, but by the time the weekend arrived I was so wiped out I did absolutely nothing.
On the exit department, things have been very up and down and have swung from diarrhoea (an immodium pill calmed things], to almost normal, to rather difficult [stool softener sent me back to square 1]. Have to say that I preferred not having to toilet every half hour and have a calmer time. I also have felt better not eating very much. I'm still having small amounts, but it's just more manageable and I just think I'll stick to that to get me to the end. I've been given a small blue tube of Flaminel hydro, which is very effective and much better than the Flamigel. So far, haven't needed opiates, even though things are excruciating with every motion. Somebody on here said it was like passing shards of glass. You nailed it with that description.
But over the weekend, it was as if a wave hit me and I've been totally exhausted ever since. I also feel somewhat disengaged and it's just washing over me and I'm just letting them all get on with it and am just observing myself being 'treated'. Weird.
Anyway, I've just embarked on Week 5 and felt the same way today. just floating along, hardly able to string a sentence together verbally and slightly out of it.
How are others doing?
I'm beginning to hate that radiation machine going over me. I've started to talk to it and tell it to get a move on. Oh dear.
Hugs to all of you, I hope you're coping.
Rainie
xxx
Hi Rainieday , I’ve no medical training but it sounds as though what you’re experiencing is severe fatigue, it can leave you feeling pretty spaced out & unable to function.
Just to be on the safe side I would mention to your team the way you’re feeling just so they’re aware.
I don’t know about the room you get your radiotherapy in but where I had mine the ceiling was made up of light panels with cherry blossoms on, that ceiling I’m sure has left me with PTSD! I visited the hospital for something unrelated to my cancer diagnosis/treatment & ended up in a room with that same ceiling & it all came flooding back!
Wishing you the very best of luck with the rest of your treatment, you’re nearly there.
Nicola
