Finished my treatment

I honestly thought it was just a matter of the skin healing, slowly and painfully, then I'd be back to normal! I didn't reckon on being so tired and weak and depressed at times! Thank goodness it's not just me! Thanks everyone!

Love Moira x

Twigley  You rode your bike?! - that’s amazing!  I can’t imagine the courage it took just to get on it... & my last job before I retired 3 years ago was 10 years as a cycling instructor!

I’m still balancing precariously on one bum cheek when I sit down & waiting to feel ok enough to ride my e-scooter.  You’re an inspiration  xx  Toni

Hi my dear, oh dear lord I'm the same. I had imagined myself in a lot better place by now. I've not long posted for some voices of experience from our lovely group as I said I'm not sure if I'm imagining feeling like this and I had some lovely responses that's helped. I was actually feeling a bit better the other day and treated myself to some lovely summer dresses (online of course) I'm finding it hard to eat again so they'll be hanging off me by next week lol. I've just seen Twigley is going for bike rides! good God my undercarriage is going into shock just thinking about it. I'm still going commando (ooo Err mrs.). Take care and keep in touch xxx Marie 

I actually think you're Wonder Woman, WHAT an achievement to ride your bike after 3 weeks! Well done!

Mecca  I’m trying to imagine an undercarriage in shock but my mind is boggled!

None of my trousers fit, & even after 6 weeks of daily brisk walking 1 hour or more I’m still only 9st 3lb & cold when I’m not moving.  Summer dresses are out for me  xx  toni

Oh Marie, you do cheer me up! This group is wonderful, they've helped me every step of the way! I think you and I must be at the same stage, I can't eat and I've tried so many times to wear knickers but I'm resigned to being commando for the rest of my life! Twigley deserves a medal ! 

Love Moira x

Yes, I think we are. A medal!!! My undercarriage is in shock and I'm psychologically disturbed just thinking about it. I'm wincing, ooing and ahhing just having a wee. I haven't even brushed my hair for 2 days. I'd be frightened I'd pull a muscle if I had one left. Honestly I've the body of a 99 year old now. I'm going to try and eat something now. Catch you later my dear xxx Marie 

Oh gosh comrades, I said to my nurse either I'm tough, lucky or both !  she said I had a high pain threshold but who knows, it is different for everyone. I was T4 N2 scc with EMVI (blood vessel involvement) due to late diagnosis. All my tumour was or is on the inside, at least 4cm wide and deep. I didn't take any codeine or ibruprofen, just the full paracetamol, which I stopped on day 15 after treatment. No diahrreah or constipation. My body was cold, my legs were electric, knees like ice even with hwbott, I couldn't sleep well, my skin flaked off my feet and itched, everything itched, and my fingernails have gone brittle, just now, this late my hands have gone dry and the ends of my fingers gone peculiar, my cuticles all thin and torn

I am using calendula pessaries in my orifices which is not doing any harm, can just get smallest dilator in vag.

My friends are shouting at me to slow down, but what will happen ? all that can happen is I will have a nap. I sooo want to get back to things.

I have a date for a scan on 1st July when they will have a look and see what is going on ...

The sun is shining !

I tell you that polymem is good stuff, I have a left over box of 4 packets if anyone wants it, not sure how you do a private message on here, I'll post it to someone ?

Sarah

This thing does affect ones emotions, I'm still a bit weepy and weak to be resilient, but one has to take tearfulness on and be kind to yourself, cry if you want to, it is part of the myriad of symptoms I guess, you deserve a little cry now and again, it probably helps, I think it does. Nobody likes being held to ransom by a bunch of rebel dna cells

Wow, your amazing! I really do get you, grab it while you can way of thinking. I have some of that polymem I was given it for the knicker elastic area.I know it's probably a stupid question but can you put it on your bum and bits? I'm determined to manage my bms just long enough to go for a short walk hopefully towards the weekend but it's really painful to wear underwear even with a sanitary towel and cream. But the polymem is soft and cool and I was wondering putting a bit on top of a liner!! Anyway you're an inspiration xxx