After radiotherapy (palliative) last year when I was looked after by a truly wonderful oncologist I am now back with the ENT department under a surgical consultant.
He is truly unapproachable and we'll miserable. He told me my tumour would not respond to chemotherapy or radiotherapy and that surgery would be "mutilation".
The tumour did respond and shrank but I don't know how much as they (he) won't give me a PET scan as there is nothing more they can do for me. When my vocal cord became paralyzed he matter of factly told me that the cancer had possibly spread to my lung and asked why I wanted a scan as there is nothing more they can do for me. After keeping me in the dark about the results for about 4 weeks and over Christmas I finally got an answer from the cancer nurses, it had not spread but the CT scan doesn't show the difference between cancerous cells and necrosis so I still don't know about the tumour. Saw another doctor, think I was being punished for daring the chase up my results ( no punishment for me only relief at not having to see him) who said the nerve to the vocal cord was probably damaged during healing.
Last appointment was over the phone with himself, I mentioned a new earache and asked if this could also be nerve damage, he said no it would be caused by the cancer and asked if I was losing weight, didn't seem to believe me when I said I wasn't.
Next appointment is Wednesday again phone, I just don't want to talk to him as he makes me feel like just giving up. Until I injured my calf the other week I had been running 20 miles a week.
My GP was up for getting me a second opinion but then was happy I had the CT scan even though it doesn't give the true picture about the tumour.
Sorry for moaning
