Keeping Focus

Dazed 20 days ago

4 replies
44 subscribers
247 views

Hi everyone,

I was told last week that my treatment wasn't working and the only option was to help manage my pain over the next few months.

This has come as a shock to say the least and there has been lots of tears, anger and frustration as im just not ready to go anywhere yet!

That said I want to make the most of whatever is left, but the prognosis has left me feeling a bit worthless - e.g. whats the point in spending that on yourself you wont be here etc. People now ask me what I used to do for work rather than what I do for work things like that bring it home that everything has changed.

Ive a wonderful supportive family who I can talk to and Im working with the palliative team in the community etc but would appreciate any tips for keeping focus on the good from those with lived experienced.

Stella2020 19 days ago

Hi Dazed

So sorry about your news. I have been told I was incurable but am going through a variety of treatments so not reached the point of no further treatment. It is good you are connecting with the palliative care team.

I think I would try to front load things. If I want to travel/ visit people, I would do that first. I am already practicing ‘never spoil a good thought’. If I am thinking of something nice I want to do or buy, I just doing it straight away. I do not delay by thinking about it or finding reasons not to do it.

Hope you are comfortable and managing to enjoying every day as it comes.

Stella

Happytimes 19 days ago

I am sorry to read your news. I have pancreatic cancer with poor prognosis. I am fully supported by friends and family and try and avoid thinking too far ahead. Rewards are experiences largely food, walking and seeing friends.

I suggest a chat with a nurse may help by them suggesting a number of tools covering anxiety etc.

I hope you encounter joy soon.

Coddfish 18 days ago

Hi Dazed

I just wanted to acknowledge your post. I don’t have any tips as these choices are so personal, but I am sorry you have reached this point and hope you can stay comfortable as well as finding some enjoyment.

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KrisPy 16 days ago in reply to Coddfish

Hi Dazed

I am with Codfish here - I just wanted you to know that you are in my thoughts and wish you well in your next period - make it count though?

I heard some very tough stories up in Glasgow last week for the Tour de 4....but what came across was their joy for life.

All very best wishes to you and your family

KrisPy

Stay positive, be strong

KrisPy