Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    how do you knpow that that "threat" won't make me do something on purpose?

    I nearly chose Willam Bell and Judy Clay "You Can have My Private Number" as my song to day - just a s a kind of private joke for us but thought that was a bit rude to evryone else so didn't - lol

    Andrew
    xx
  • All I can say to that, is hahahahahaha! take care, Andrew....

    Moomy

  • FormerMember
    FormerMember
    Helen,

    I will, and you too.

    Sue,

    well it seems your hard work and good deed has made the day. See I told you that the karmic give out and get back would work and it has started to. Your friend obviously has started to see the light and I am sure she will not ge backwards from now on, although there will be tougher days I am sure and I am also sure she will take those times out on those nearest to her (which probably sometimes means you) and if that is the case - then take it as a compliment!

    Best wishes and try not to let work get in the way of your life - have a curry -

    Andrew
    xx
  • Night night , Liz, sleep well and have lovely dreams.....

    Moomy

  • FormerMember
    FormerMember
    Hi Andrew - Good Evening if you are still up!

    We spoke a couple of weeks ago on Bob's thread about my Dad's battle to have Sutent funded - you may remember? Anyway, I have been quietly reading your's and other's threads and was concerned to read about your 'psychotic' episode a few days ago, I'm truly pleased that you feel better and hope that you don't have to go through that again.

    The reason I post is that I had a phone call earlier to advise that Dad has been rushed into hospital and the symptoms that I have had described to me sound eerily like your own of a few days ago. Quite psychotic and very frightening for my Step Mum. It all started Thursday morning when he awoke feeling 'fuzzy headed' (he is suffering with high blood pressure so is on medication to control that), he then went to have a CT scan and after that felt very poorly but went home. At home he continued to deteriorate and acting 'strange' and vomiting, so in the middle of the night an emergency Doctor was called who gave him an injection to stop the vomiting. Unfortunately, this seemed to have a very bad effect on him and this is when he literally started climbing the walls and behaving very erratically. Step Mum called the Doc again and it took over an hour for him to get there and he said there was nothing he could do and Dad would have to sleep off the effects....... Hello Doctor, he's not sleeping! Finally at 10am after further deterioration and now with him in severe pain radiating across his chest and around his right side kidney Dad's GP was called. He arrived approx. 45 minutes later by which time 999 had already been called and the Ambulance had arrived so he was admitted to hospital. There was protein in his urine so we are all hoping he has an UTI infection in addition to a reaction to the combination of drugs, however they are doing a 'brain scan' tomorrow to ascertain what's going on..... We are all being positive and telling ourselves that at least if there is something going on in his brain then at least they can attempt to deal with it but it is worrying.

    Sorry to offload this on your thread but I really think it's so wonderful that people are able to share things that happen to them in the course of their treatment. I really feel that often with the newer drugs the full implications of how they can affect us are never entirely known and so I thank goodness that there are sites like this one where we can share. Also, I wanted to let you know that you're not alone in your 'episodes' (and I'm not making light of it, they sound very frightening).

    By the way, you lot on this thread seem to be having far too much of a good time and a giggle!

    Keep enjoying the good times and laughs,

    Best wishes to everyone.

    Louise
  • FormerMember
    FormerMember

    Hi Louise,

    how are you today and thanks for your message, I hope that your dad is doing better now. I wasn't actually up but rather stupidly fell asleep on the sofa (I seem to do that quite allot nowadays) and woke up rather groggily at 6.30am this morning!

    Anyway thanks for your concern, I have an appt with my pain doc on Monday who prescribes all these drugs and also controls the combinations I take so I will be discussing this latest episode. l though I do really believe that it was the Diazepam that caused the things that happened. I have only used that particular drug one occasion since and at a very low dose and that worked well with no other effects.

    We will see on Monday!

    If you like the thread then please feel free to join in at any time, we like the opinions and thoughts of others and new people are most welcome. We do not ever criticise anyone and respect their views totally. I like to think that we are friends on here and look for people to also find ways to entertain us as well. So please feel free to put your thoughts feelings and opinions at any time! But please be funny as well - lol -

    That’s all for now from me for the recruitment drive - lol -

    For the normal morning blog, as you can see from above stupid old me slept on the sofa again - really mjst stop doing that after I spent over £4,000 on a new bed!!

    Taken the morning set of pills but I have to say that I have felt no real reaction to yesterdays exertions and actually the pain levels are down once again so, maybe, the radiotherapy treatment is belatedly having an effect and the addition of the Amiltryptiline must also have helped. Anyway also as said above I ma reviewing these on Monday.

    I have on slight moral issue, I have a CT Scan booked for next week which was originally for the end of the second Sutent cycle which was to be next week. However since they delayed the second round due to the radiotherapy I now don't finish this round fro a further two weeks. So the question is this; 1) do I take the scan as an added extra and see what is going on inside me with the remaining cancer sites in my throat, groin and lung? or; 2) cancel this scan and wait a further six weeks to see what is happening?

    I am not good at these decisions, part of me knows that these scans cost a fortune and therefore I should cancel it but part of me thinks well its already budgeted and paid for so will that money really be saved if don't turn up - would any other person benefit from me not doing the scan?

    Help please!!!!!!

    Good morning to anyone who joins in in the am and good afternoon of you're really a lazy sod and don't join until this afternoon!!

    Cheers,

    Andrew
    xx

  • FormerMember
    FormerMember
    Morning Betty,

    I love our tast in music don't you, lol - for the morning I adore Dreams, I just love the laid back rhythm and Stevie Nicks smokey voice - I could listen to it all day. I remember buying that album when It came out - 1976 - I think it was and playing it to death in my bedroom at home. That was alwayss my favourite track.

    I then would put Landslide as my next from the previous album - which I also loved to bits and practically wore out.

    Has anyone else had a n album that they bought brand new and never stopped playing? I don't think we do that sort of thing nowadays - too much media intriusion from other sources - but in my youth we did.

    What about you Liz, which older record/album/cd did you do that to?

    Andrew
    xx
  • FormerMember
    FormerMember
    This shows that the Supremes could have caarried on having hits without Diana Ross had they been given the chance and some good songs, but they weren't and so they didn't - but I do love this song - upliftring for a morning I feel - see what you think -

    http://www.youtube.com/watch?v=ffiXo3c7Ns8

    Andrew
    xx
  • FormerMember
    FormerMember
    Be back in a while - am off to shower shave and bathe etc -

    see you soon,

    Andrew
    xx
  • Andrew, my goodness you are up and about early......am so pleased the pain levels seem better. In response to your query about the scan, well, wouldn't you like to know how well it's going? Can you cope if not as well as you think? Then I think you have the answer yourself, just listen to your inner most self.....your gut feelings, really....Enjoy the day, it looks like we are set like this the whole weekend, we almost had a storm last night , my friend certainly had thunder nearby, she lives about 4 miles away, but think it meandered further west in the end. love to all on here.......

    Moomy