I have only been on this site a few times. All overtaken by events. My husband was diagnosed with lung cancer in November 2019. After brain surgery for secondary tumour in January, he commenced immunotherapy in March. Within a week he lost control of lower limbs and experienced agonisiing pain. Hospitalised. Cancer was no worse so they decided cause was unknown. No one wanted to blame immunotherapy, but he got pneumonia and we were told to expect the worst. Diagnosed end of life so no respirator. Tested for Covid. Not covid. Fought back against pneumonia and recovered. Paralysis creeping higher. Booted out of side room as Covid hit and they needed it. Put back on general ward and the 1 visitor 1 hour a day rule came into force. Unable to answer phone, confused. Got moved to local hospital as non covid. No visitors allowed (halfway through a visit, when they threw me out)and he couldn't understand). Got hosptial bed etc on a Thursday, and got him home on the Friday. He died at midday on the following Tuesday. April 1st.
I buried him under covid rules. 10 people only.. Everyone is sorry. Everyone is thinking of me. Everyone will do everything but no one can do anything. I am here alone. Good thing, I think. It's a good excuse for people not to visit. They aren't allowed.
He died in pain. Sorry, but he did. They could not find a liquid equivalent to gabapentin to put in the driver along with the morphine, and the morphine did not work on its own, as the pain was neuropathical. It took them a week to find this out, then they withdrew it, because he could not swallow..
Dearest people, there may be hope for many of you, but there was no hope for him. 5 months from diagnosis, 5 weeks from start of immunotherapy, and 5 days from finally getting him home.
