Radiotherapy/steroids

Pretty awful for you right now .Bill lost the plot on steroids it was so bad I nearly walked out a,couple of times .He is palliative now and we are not going to put him on them .I dont think I could cope with it to be fair . I think you have to ignore it as much as possible its a lot to do with control as well the more you try to protect them the more resentful they become .If he wants to risk going out then thats his choice  I now think I have done as much as I can and if they want to risk themselves that down to them .I  would keep out of his way Im willing to bet as things progress he will be needing you again before long . Find things that make you happy in the short term and remember its the drugs and the diesease making him like it .Deep down the man you love is still there although its hard to find him at the moment .Good luck and remember we are here for you .Lots of hugs xx

Oh , my heart goes out to you. Steroids can even make people psychotic. You can't force him to stay safe, so perhaps it's time to make things a little easier on yourself, cut yourself some slack and try to enjoy the time you have when he goes out. Perhaps, in a way, it is best you 'stay out of the way'. He's a different person when he's taking steroids and you can't get through to the man behind the treatment. Getting away from our life partners when they're aggressive isn't easy and I really do know how you feel, although you've been going through it a lot longer than I have.You could try calling his specialist nurse on Monday, or call the helpline on 0800 808 000 to have someone to chat to. I'm with you in spirit.

Big hugs,

Part of the problem is he has always been ‘ out of tune’ with how his behaviour is. He never admitted when he is was being unreasonable. His way has always been to turn it around and so it’s not me it’s you.

Because he has terminal cancer. It entitles him to be able to act however he wants. Because he has Glioblastoma we should all make allowances. Because he is dying this gives him the right to be selfish , but does it really?

yes I love it when he goes out and I have no idea if he is okay. Has Had a seizure. Or is contracting coronavirus and bringing it to me,

I’m sleeping in guest bedroom now, he is ignoring me. This normally lasts a few days,  I have to ensure he takes his medication. But apart from that I am staying in my room. The steroids keep him awake also. When he does fall asleep he talks in his sleep and fidgety, normally if I leave our bed to come to guest room, he wakes up and gets scared and comes looking for me. Although when he is in this aggressive mood it will be days of me in this room. Just last Sunday night. I was desperate to sleep. He fidgety and snoring and talking. When he awoke and couldn’t find me he came searching and sobbing for two hours, because he said I didn’t want to cuddle him! Now we are on steroids, he wouldn’t care if I lived or died