We are three months in on our glioblastoma grade 4 journey
The first 5 weeks I had to cope with being the only one who knew the awfulness of my partner’s prognosis. A lonely and sad time for both of us. But once family new they have been supportive and kind. However, I am experiencing being treated by one of his grown up children as incompetent. We have a family what’s app group. My partner added me so that I could keep his family informed. Save me having to send loads of individual texts. So after a update yesterday stating my partners chemo is being cancelled Due to coronavirus. I received a text from them saying in future don’t tell the group. Tell me first!!!!! To put icing on cake she then went on to say don’t tell her dad she had text me. As he cannot be stressed.
Really upsetting. Partner had asked me to update the family and also as if I would do anything to stress my partner. I’ve spent three months ensuring his every need is cared for. When he is being aggressive or unkind. Or having seizures. I put myself last. I don’t sleep so I can watch over him.
even the day before going into hospital she text me in morning saying. Make sure you get him a bag ready
Hi ,
it can be very hard being the only one "in the know" but also people's reaction to a cancer diagnosis can be very hard to process for us all. Perhaps she thinks she is helping so a polite message thanking her for her suggestion but saying that you and your partner had agreed how to communicate news might be helpful.
Have you got all the support you need? I know at one point I was quite close to the edge and it I went down then we would end up with 3 patients, if you look at our guide looking after someone with cancer I am sure there is lots you might relate to.
<<hugs>>
Steve
