Feeling lost

FormerMember
FormerMember
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Hello,

I’m new to this so still learning the ropes as they say.

My mum has been diagnosed with stage 2 breast cancer.

she has had her op and is on medicine, tablets 1 a day.

i have been advised to try support groups and online 

forums to help or for support.

i have been there for my mum from diagnosis to her now 

receiving treatment.

Did anyone else find that you were just treated as being 

there like you were not affected by what is happening?

i know that the patient is the main priority and concern 

and obviously I will be there for my mum 100% but it’s 

knowing who is there for you.

  • FormerMember
    FormerMember

    Hi

    Warm welcome to the club no one wants to join :-/   As online support groups go this is a really good place to have found yourself.

    Sorry to read about your mum but hoping she has recovered well from surgery. No mention of chemo or radiotherapy so assume she dodged those particular bullets ?

    Your comment is very true, seems the health service doesn't seem to realise carers need information and support as much as the patient.  Several here mentioned their partner / family member seems to cope with diagnosis and treatment far better emotionally than those around them.

    Are the tablets your mum is taking to reduce her oestrogen levels (Tamoxifen or Letrozole for instance) ? As they can come with some side effects long term and are usually prescribed for 5 or 10 years.

    You could have a read through this Emotional Support for Carers info area - if only to let you know you aren't on your own.

    If you have any treatment related questions there is also a Breast Group you could check out and join.

    Hope this is of some help for now, G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Hello Dreamthief,

    Thank you for replying to my message and welcoming me to the group. My mum’s op went well and they removed three lymph nodes from under her arm. Unfortunately this caused a lot of problems with her being able to do the housework etc and I was working full-time so I helped as much as I could wished I could have done more and I do beat myself up everyday wishing I could do more. She had physio to help gain the movement back in her arm and she can do near enough everything now which is good. My mum didn’t need chemotherapy or radiotherapy as she is on a tablet 1 a day for 5 years think it’s called anaszole not sure if I’ve spelt that correctly. Thank you for the link about the emotional side of dealing with Cancer. I have read it and there is a lot of things I am guilty of doing and I think I need to do a bit more self care as sometimes I’m running around looking after my mum I forget to look after myself.