My mum and her terminal cancer and dementia

FormerMember
FormerMember
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Hi all this is my first time on here, I felt I needed to join a group where others were unfortunately in the same position.

My mum has mesothelioma which is basically asbestosis,  she was diagnosed in February 2019 and given 12 months, she was also diagnosed with dementia in december 2018.

My mum still lives alone, I have tried to get her to move in with me but she is an independent stubborn old east end lady and I admire her for that but she is constantly telling me how lonely she is. I go round every morning at 9am to administer medication and then am in and out all day, I do all her chores which is not a problem but I feel so alone. I have a brother who comes down once every 2/3 weeks, my daughter also helps but she has her own life and has just found out that she is pregnant which is fantastic news.

Sometimes i just dont no where to turn as she gets very confused and because of the dementia forgets she has cancer, she dosent no she is terminal, i just dont no what to do sometimes and feel like pulling my hair out.  I have no life because everything revolves around mum, I'm constantly tired as cannot sleep and feel i have to hold everything together for everyone.  

I want to do the best i can for my mum because she is my mum but sometimes i just want to run away.

Would be nice to talk to someone else in the same position.

Thanks..

  • Hi and welcome to Carers. I'm sorry to hear what you're going through but completely understand how you feel. I used to look after my mum and there were times when, if I gave her a golden egg she'd have complained that she couldn't eat it. Can you take some self pampering time?

    Love and hugs,

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

    Click here to see how to add details to your profile. It helps everyone to see a little about you

  • FormerMember
    FormerMember in reply to LoobyLou49

    Thanks loobylou, it sure is hard, like many others on here it has taken oven my life. I cant do anything without thinking about mum first. The sad thing is that because of her dementia she sometimes forgets she has cancer and then wonders why she is so breathless and has so much pain, I continuously find myself lying to her so that she dosent have to be told yet again she has cancer. It's just sosad, she is not the woman she was a year ago and I find it so hard to deal with sometimes, well a lot of the time at the moment :( 

    I just have to stay strong for her when I side I am falling apart..

    X

  • Hi ,

    I don't think of it so much as lying to someone as agreeing with them; it's kinder to go along with what they say. We said goodbye to my sister-in-law at her funeral yesterday; it was hard for her as dementia took her, but in the end she got so tired of it all, she just let go and now I have chosen my abiding memory of her as the last one when we shared a really good laugh.

    Thinking of you,

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

    Click here to see how to add details to your profile. It helps everyone to see a little about you

  • FormerMember
    FormerMember in reply to LoobyLou49

    Sorry to hear about your sister in law loobylou, sad times but she as rest now.

    Mum been in pain today and confused.

    You take care..

    X