Any advice re getting any support please

Hi there, I think that you should have palliative care and maybe other help. Would it be worth asking your Gp and your parents  GPs about this, make a list before you go so you remember everything. If you phone Macmillan I'm sure they will point you in the right directions have you put a claim in for attendance allowance for them, you may also get carers allowance which may help a little. Maggies centres are also very helpful with advice, I yhink you have to shout out . Xxx

Hi and welcome to the online community and to the club you didn't want to join and I'm sorry that because of the situation with your parents you've had reach out to us.

Are you being unrealistic - NO 

Living and being treated in a different county should not make difference to your dads treatment.

As your mum and dad are living with you, if you have not already done so, you should register them both with your own GP practice then have a discussion with your GP about care in the community and also if he could do a referral to the Macmillan nurses with the hope he can get the ball rolling for you.

If he can't arrange for a Macmillan nurse to call ask him for a referral to  Marie Curie patient services they also offer a home based nursing service and end of life care.

The other thing you can do is speak to your local County Council and the Adult Care Team and ask for a needs assessment for both mum and dad and also yourself.

The following might be of interest to you 

Macmillans in your area

Needs Assessment patient

Needs Assessment   - Carers

Social care support guide

Please free to come back and ask as many questions as you need and as you are member of the carers only group you can come on here at any time for a chat, to have a rant or rave or, as we all have to do at some time, let off steam knowing that everyone in this group is the same as you, looking after loved ones and will not judge you in anyway in fact everyone will go out of their way to offer to support.

Please remember to be an effective carer you must look after yourself, it's not an easy roll you've fallen into it's a very demanding one which will leave you tired and exhausted and you must try, whenever  possible to have some ME TIME and just step back for a while and recharge your batteries you'll certainly feel better for doing so.

I hope The BODACH has been of some help to you and if I can be of any further help with anything please give me a shout out and I'll do what I can to help and advise you

Ian

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Hi thanks very much for your reply. I have applied for Attendance Allowance, hopefully that will be sorted soon. I have looked into carers allowance but I don't qualify because I have a small income from a share in a rental property. Yes I think you're right I need to speak to both their GP and also mine. Thanks again for the support x

Thank you so much for all the above info. It is such a relief to realise that I am not being unrealistic. I really feel like I am floundering and knowing that there is support out there is great to know. I will make an appointment with both GPs (theirs and mine) and go from there. Thanks again for the advice x