Just diagnosed at 39 - any advice greatly welcome!

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Hello everyone 

I am a 39 years old mum of a 3,5 year old and an 11 month old. I found a tiny lump a few weeks ago and immediately told my GP. Turned out to be cancer with a tiny amount in my underarm lymph too. I am not triple negative and am estrogen positive so I’m now looking at chemo, surgery, radiotherapy and several years of hormone therapy. 
has anyone been through or is going through a similar experience? 
thanks so much 

  • Amazing news! So happy for you! Mine responded very well so far, I had my imaging done last week but obviously the main result will be after the opp when they test it. Fingers crossed! Plus a week of radio to mop things up. I can't believe we have gone so far. It was and still is a rollercoaster. I had a really good experience, I m confident with my team, they answered all my questions, didn't have any delays with treatment even when my platelets were a bit low. I trust them fully. How about you?! X

  • Yes my bloods dropped the last 2 weeks also but we’re up again this week so I also didn’t need to skip any sessions. It’s a crazy experience isn’t it. I’m going to need some help though going forward to not get too paranoid about it coming back, that will be my next challenge. 
    yes my team are great also, are you being treated in London? X

  • I m in Dorset. I know exactly what you mean. I haven't finished this part yet and I m already thinking about reoccurrence. I want to ask my consultant what else I can do (privately) as part of diagnostics like blood work, CT or MRI because we will only get yearly mammogram on NHS. I have sign up on FB to young women and breast cancer and to be honest with you sometimes I read so much that I become paranoid. at the same time I wanna do anything I can to stay healthy. X

  • I’m being treated privately through insurance and the mammograms are also yearly but I have asked a lot of questions about this subject and I’ve been reassured that yearly is enough to detect even the slightest change and that more CT scans etc would only expose you to more radiation that you would need. I worry that it may be somewhere else and they’ve missed it but you just have to trust the specialists. 
    I saw an alternative specialist last week who looks at food intolerances and alternative therapies etc and her best advice was to get sugar out of your life, eat small amounts of dairy and get rid of skin products, house hold products, make up etc that is full of chemicals and use organic natural products. I will now be doing this for my skincare as I usually love all the fancy creams but if this could help then why not. Also to ditch traditional deodorant and use a natural one. The market is now full of food brands that do all these things. It may be a load of rubbish but I figure what’s the harm in trying! X

  • This is exactly my thinking, what if it is somewhere else and that won't be picked up. I will ask my consultant anyway and see what she thinks and let you know. I m really good with my diet, I only eat natural sugars that is in food like fruit and veg, agave syrup for my porridge and that is not every day, dark chocolate, if I fancy a cake I make it. It is hard to completely avoid it but definetely reduce it. I m pescetarian. Dairy I have cut to minimum, some cheese and goat yogurt, occasionally ice cream. I used to do intermittent fasting 4 times a week to give my body a break from food and give it time to repair. So hard to know what is actually helpfull. X

  • Have you heard about recovery room, it is on YouTube. X

  • Hi. How are you doing?! I hope things are moving forward positively. I had my OPP almost 4 weeks ago, had full CPR which I m really pleased about and awaiting radio which will happen in new year. Still a bit tired, but hey it has been intense. I have started tamoxifen few days ago. So far so good. How things with you?! X

  • Hi! 
    lovely to hear from you! I have now finished chemo and am awaiting MRI results which I’m very nervous about. 
    whats CPR? Also how did you find recovering from the surgery? Mine is booked for second week in January. X

  • Oh great news about chemo! First milestone behind you. I m crossing my fingers for your scan. CPR is complete pathology respond, which means no evidence of cancer in tissue they have cut out. We wanRelaxedt that for you Relaxed I had lumpectomy and axillary cleareance, recovery is ok, I was more sore than in pain, still working hard with exercises to make sure my arm has full mobility. What are you having done in Jan!? X️

  • I’ve just had the call from my surgeon - everything has shrunk as expected. They can see something else on every scan they have done but they think it’s nothing to worry about but will monitor. Phew! I was dreading that call. 
    I am having the expect same surgery as you. Were you out of commission for several days unable to do anything? X