Hi everyone
I had my lumpectomy and sentinel node removal early November for invasive Lobular breast cancer grade 2. Diagnosed end of September.
End of November told clear margins and node clear so referred to next stage the oncologist.
On the morning before the oncologist appt a letter arrives giving the final pathology report on the lump this states Grade 3 invasive lobular and some LCIS too..
I temporarily lost the plot! and then decided it would be a typo as the surgeon had these results at the appt 10 days ago and nothing was said.
The oncologist was lovely and the first thing I asked, after hello!, my letter says grade 3 is this correct?
As she said it was definitely correct and the tumour was a mix of both grades 3 & 2 and a mix of mainly invasive with small % of pre invasive.. I felt calm which was very weird compared to the panic of earlier.
The second thing I asked was "how long is this appointment?" she said "as long as it takes"... Wow! so different from the surgery team who rushed me out quicker than a GP appointment.
We agreed to send off for gene profile tests to get clearer picture of the benefits of chemotherapy for my 13mm Stage 1 grade 3 ILC. (2 week wait)
NHS Predict calculations gave benefits of chemo based on statistics at only 1%
Endopredict results for my tumour's genes: High risk of distant recurrence (metastases) within 15 years.. Benefit of short course of chemotherapy 7% reduction of risk...... Life is full of surprises..
Again oncologist was excellent she had taken a full medical and personal history at first meeting, I am 49 married with 2 children with disabilities. They give me a huge determination to give myself the best chance to be here to support them into adulthood.
My results are high risk but the lower end of high risk..
Decided to have a 4x EC course of chemo, with possible bisphosphonates added on as well (need dental check first).
I am hoping for the best ref side effects but agreed with oncologist I will take it one session at a time.
After chemo I will have 20 radiotherapy sessions... Then letrizole? for minimum 5 years.
Wishing all a happy Christmas,
I can't wait for the Spring 
xxx
