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(10 Dec, 2012)
It would seem that 100mg of morphine is not a good thing to be taking… specially not 100mg plus a spoonful of syrup whenever I feel i need one.
hmmm.
I’m told that isn’t about pain relief its about addiction.
And I’ve taken that and a reducing morphine regime on the chin.
It felt quite bad having my syrup locked up in a drawer until the addiction word was mentioned at which point my stubborness instantly set in …I don’t DO addiction. I even gave...
(10 Dec, 2012)
Thursday was quite an exciting day all round…. Jane buggered off to London for some Christamssy shenanigens and my c-s-b came to visit.
Now he doesn’t like being mentioned in my blog being a shy retiring creature but I can’t get round this day without mentioning him as he was the hero of the hour… so just forget you saw his initials and if you see him don’t mention it and certainly don’t poke him with a stick if he looks at all as if he might be deep in hibernation...
(3 Dec, 2012)
Feeling perkier today… feeling like i’d like to be doing stuff..a little bit of stuff beyond the lying in bed and dozing and reading I’ve been doing the last few days.
But we still have no heating…. and thats a huge disincentive to removing myself from my cocoon in one of the ony two rooms with a still working radiator.
As the temperatures get colder at night we are going into lock down…. last night all sleeping in one room, every blanket and duvet...
(29 Nov, 2012)
I’m sure it’s not only the nhs does this kind of thing… its big companies/corporations…. its about customer related experience…its about communication.
We”ll go back to yesterday during my first chemo session I had it all explained to me about how my lymphoma was a 1e and the ‘e’ means its not usually found where it has been ie totally outside a lymphnode… the chemo I’m having does going round the blood very well but doesn’t make ...
(28 Nov, 2012)
First chemotherapy session today… having been quite blase about it all I woke up this morning terrified, not just about an unknown process but the after effects, side effects etc etc.
I was jolly glad my daughter was coming with me to hold my hand and drive the car… 6 hours is a long stint.
We set off jolly early becuase of the ‘official opening’ of the hospital by Wills and Kate… but as it was we pretty much drove straight in and started early… so early the...
(28 Nov, 2012)
36 hours ago … my morphine usage was spiralling… but let me fill you in how its used…. you have a base layer of long release drug that you take every twelve hours. It should keep you at a constant lever of relief…
Above and beyond that is a syrup taken by mouth as neccessary… usually 1-2 spoons every 4 to six hours.
You keep checking on the intake of the quick release stuff until you work out the base level that gives you good cover and...
(24 Nov, 2012)
s’been a wobbly week painwise… being sent home with paracetamol from the hospital… having it upped by a GP to low strength co-codamol…. followed the next day by my usual GP upping it to high strength co-codamol.
By Thursday I hadn’t had much sleep… I ended up spending much of Thursday night (having realised I’d already gone over my days tablet limit) in pain and lying in the dark popping my hernias back into place.
I’ve since...
(22 Nov, 2012)
…is a diffuse large B cell lymphoma… its a non Hodgkins thing and is very aggressive (I knew enough to burst into tears with relief not fear when the consultant said it’s aggressive).
I start chemotherapy on Wednesday… no doubt more on that later.
Time to fill the boy in a bit now things are starting to move and be definite… so far he knows I’m poorly… that I have a lump in my tummy and that it might need an operation or zapping with chemicals...
(21 Nov, 2012)
I answered the phone to a company based locally that rings us regulary…. oh and they sell windows. They ring us up even though they know we don’t want or need new windows…. they’ve been told… politely and not so politely. If i wanted to buy windows after 9 years of them ringing they would be the last place I would go to fill my glazing needs.
Today they rang.
Hello [insert local window firm]here. How are you today?
I’ve got cancer, a hernia...
(20 Nov, 2012)
…. so… too distraught to ask for the siren on the ambulance (dear Jim’ll Fix I’d like to ride in the back of an ambulance with the sirens on….preferably to a hospital you’ve no dodgy links to).
The nice ambulance men decided gas and air wasn’t suitable as I’d been vomiting and suggested morphine…. as i never knowingly say no to morphine in a legally acceptable format I said yes…. and the ride was long enough for a second yes that made...
