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I've not been blogging as much this week because there hasn't really been much to add. Things have stayed pretty much the same. The saliva has become thicker, but not really thick and I've found swills with the salt water and then later the carhopsol seems to give some relief from it.
Denplan have paid out on the private prescription I had for that so that's fab.
I'm still doing 5ml of oramorph about every 4 hours which seems to do the trick. Because I've been into work 3 days this...
Another bittersweet day... Today I collected my gorgeous man from the hospital. They have sent him home to die... How is it even possible that 8 weeks ago we were planning our future, our house is Malta, our careers, etc..... and now we are talking funerals and after-life plans..
The Macmillan nurse I met today was lovely, helpful and kind. Don't get me wrong, the other one I met probably is too, but she is the one that has been giving me the BAD news all the time... I know, unfair but I can't help...
I have enjoyed 4 years of good health and wonderful times with family and friends but the dreaded lymphoma is back. I always knew this was on the cards but I'm sure all of us in this position always hopes we will be the one to beat it.
I was diagnosed with follicular lymphoma grade1-2 stage 4 with 40% bone marrow involvement in July 2009. I was given R Chop chemo within the week as my scan showed bulky disease pressing on vital blood vessels and organs. I had a good response to treatment with...
Things are definately hurting more today. Sore patch on my throat that makes swallowing tricky. Warm water seems to be less irritating than cold water.
My tongue is feeling quite sore again. I have been upping the oramorph ( as I was told) and am now in 4.5ml every 4 hours. Still doesn't seem to send me woozy so that's good.
Having real problems getting the mouth/ tongue guard in for radiotherapy but everyone is very patient and waits for me to wiggle it in.
Another 3 bags of prescriptions...
