Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?
Unsure how to get started? Take a look at our help pages on blogs.
Today we are really pleased to welcome a new guest blogger for the Community News, Amanda-Jayne. Amanda-Jayne was diagnosed with Breast cancer in June 2019 and used poetry and journaling to diarise her experience throughout. Amanda-Jayne has very kindly sent through her poetry and writing to us here and we are going to be sharing it with you over the next few weeks. So, here is volume one of Amanda- Jayne’s journey through breast cancer in verse and word.
Amanda-Jayne with her...
Hi everyone,
We’re posting this afternoon to let you know about some planned Community ‘downtime’ which will be happening next Tuesday, 11th February from 7am-1pm.
We are carrying out essential maintenance which will better protect the Community and its users from security risks.
We have tried to coordinate this to cause minimum disruption and whilst we are hopeful that the site might be up and running again before the end of the planned downtime, this may not be the case.
We’re...
The latest Cystoureteroscopy and precursor CT Scan with contrast have shown clear and paved the way for the next batch of BCG once they take this damn stent out. Yes, I’m lucky to be going on, to still have a pretty good quality of life, a reasonably good one in fact, but at times I can’t help wondering how much longer this has to go on.
Not a great one for using the words many find helpful, such as Journey or battle, I tend to see it as just bad luck. Ok there are times I think it may...
Benedict and his mum at his master’s graduation in 2018.
Benedict used to work as part of Macmillan’s Community Team, he got in touch recently to send us a piece he wrote about coping with the grief of losing his mum on Easter Sunday last year. We wanted to share it with you all today, and we want to thank Benedict for writing such an honest, open, and powerful piece of writing for us.
I’m not really sure why I’m writing this. Aside from a few tentative forays into journalism during...
Just before Christmas I had my annual check and my first mammogram since completing treatment. I was so frightened that there might be something wrong. Will this feeling ever disappear completely? I got the results of mammogram in the middle of January and no signs of any abnormality. My next check will be in December. I still feel incredibly thankful for the wonderful treatment I received and for the amazing doctors and nurses who treated me. I will have zoledronic acid injections every six months...
When I wrote my first blog post around a year ago I’d just spent a week on holiday in a cottage on the coast, with a dog for company. That companionship of a loving pet provided a lift to the spirits and a recognition of the importance of compassion, kindness and friendship.
It made me realise how good animals are at taking your mind from the often negative thoughts and worries associated with going through treatment for a serious illness, and focusing on good and positive feelings instead...
Debbie, our wonderful 'chef to ostomates' is back today with a delicious warming Fish Pie recipe, perfect for cold winter nights. All of Debbie’s recipes are, of course, designed with Ostomates in mind and in case you’ve missed any of her recipes to date, you can find them all in our Ileostomy, colostomy and stoma support group. So why not put an apron on and get cooking!
'This Fish Pie is another family favourite and is one that I have used many times over the last year as it...
My 15 year with NETS very hard journey but i have great people looking after me. I should not be here if it was not for the great service of the NHS AND RESEARCH. I have just moved onto this site. the Neuroendocrine system is a complex nasty cancer that can strike anywhere and any age. My first advice in my 15 experience is that you have not got access to a NET doctor then try straight away to got your doctor do it. They are hard ti find but if you are lucky enough to find one it may improve your...
Cordelia, our guest blogger from earlier this week, is back today with a poem she wrote about coping with people’s comments around her breast cancer diagnosis. Want to catch up on Cordelia’s previous blog? Click here to read her story.
Please don’t…
Please don’t tell me how I should feel
Or what I should think about having breast cancer;
How I should be ‘over it’ by now;
How I should be more positive;
How I should be grateful that I’m alive.
...
Just wanted to wish everyone a Happy New Year and offer my hopes that each of you finds 2020 a year of hope and peace.
We are doing pretty good. 2020 started out with each of us coming down with stomach/intestinal flu. I ended up having to go into the ER for some fluids and anti-nausea medication. Terry's "bug" was more of the intestinal type with a high fever for a few days. Needless to say we were more than a little frightened if things were "relapsing", as he had some night sweats...
