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Daniel is still being treated at the Royal Marsden and after being so devastated that he was going to have to spend his Christmas there, as the big day approaches I am just more and more impressed each day with the place!
When I first heard that Daniel would be having chemo Christmas Day, I did my absolute best to try and plan some elaborate surprises for him to make his day that little bit more special. But I largely hit a brick wall. I found it near on impossible to get ANYONE to help me on the...
My mum wanted to write a blog post - to show people her perspective:
"Seven days after chemotherapy, and at last Ailsa begins to emerge from the darkness of its side effects.
The signs are clear: not so pallid, a small but genuine smile and some
spontaneous conversation about the weekend and Christmas trees. Followed by
some dedicated time on social media and replying to messages. Concentration is
back and interest in the world returns.
This week has been the worst so far. Ailsa, our beautiful...
Hi all,
Hope you are all well and well prepared for Christmas? Things have finally started to get a bit more seasonal here. We went Christmas tree shopping for a space saving tree to put up in our dining room/living room and the children dressed it. A first for me because I am normally very possessive and OCD about dressing the tree, but maybe because this one isn't the usual one I found it easier? (wink, wink).
This evening despite me feeling that I really didn't feel like doing it I have written...
Today is the first day of no pills, injections, blood tests, chemo ....
Well apart from a 2 month prescription for antibiotics, but for the last 3 months I have started a new cycle on a Wednesday and had a chemo session also.
Since last time I had my final chemo combined with a blood transfusion last week, usual couple of days of not moving. Had the worst stomach cramps yet, eventually found a position I could fall asleep in but was close to going to hospital as pain was making me almost...
17 months of living without my husband by my side. 17 months of grief and heartache, visiting dark places and finally some more happy places. Memories. Over and over they return. How my heart and soul and body ache for him. So much has happened here without him, so much has moved on. I struggled so much with the feeling that I was leaving him behind, I felt disloyal, unloving and down right miserable. But I didn't have to leave him behind. I'm bringing him along with me, into my life, into our lives...
........ after 25 'radio' sessions and 5 weeks in London - I'm home and it is heaven - my own bed mmmm - my own toilet - not having to lock the door !!!!.
Recovery and rest now - I think Christmas is soon !!!!!! - better start getting a bit organised
At this time of year I remember discovering a lump, I am grateful that the treatment worked but I know there are lots of people with scary stuff ahead, good luck to them all!
We're waiting on an outcome,
And we're waiting for a cure,
We're waiting in a waiting room,
For hours and hours and more,
We're waiting for a system
To reduce the wait, for sure,
Don't bet on a fix for this by Christmas...
I'm hoping it is nothing,
So. I'm hoping I was wrong,
I'm hoping if we freeze...
Ok I think I did this wrong. I thought I'd stick my bit on about my last 3 months so hope I'm in the right place, if not I'm sure someone will delete it or move it. I think this is more for me and coming to terms with the situation that I'm in and that most of us are in as let's face it normal people have got Facebook. For 11 months I had stomach pains constantly the Doctors diagnosed IBS then a fungal infection then IBS again I had blood tests galore and 2 scans. Finally after scan number 3 & 4...
I have not written a blog in ages - it just shows how I'm getting on with life really. Getting back to work and being very sociable (and lazy).
The last blog was written just before the CT scan after my third chemo (half way through the chemo). I got my scan results about 5 days later when Nick and I had an appointment with my doctor at the hospital. We were both nervous - but I was quite optimistic about the results because I felt so much better in terms of symptoms. Sure enough the first thing...
