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I've been promising myself for almost two years now that I'd start a blog tomorrow.
Well, today's the day! I'm not going to write too much now but at least I've made a start! I read earlier that one of my friends from the Living with Incurable Cancer Group had died on Saturday morning, she was called Jane and her username was Dyad. Eamonn, Russell, Jane and myself had joined the Macaite around the same time and although we never actually met, it felt as if we had been friends all our lives...
Hi all,
It is one am here. I am still up. I often am at this time of day. It is the quiet times that get me.
I am struggling to process this mentally. I know there are cancer patients like me who have and are able to go forward with great positivity and know that they are fighting this disease all the way. I want to be like that I really do. But I am struggling.
I have no real hope to cling to. Obviously I have my family but that is different. I think I need something about this disease to hope for...
Hello dear readers.
Since my last post my emotions have settled a little but inevitably I still break down on occasion. I cannot help it. Often this is when I am faced with the stark reality of my disease, this cancer. This is when the Macmillan nurse comes or the district nurse or the health visitor. All these people want to help me, they are sad for me. I get that. I do. But I don't want them here. I don't like what they represent but accept them I must. Wasting time wallowing won't help...
I like Anthony Wilson's comment that whatever we write it is never the same for someone else, but at least we can be honest survivors…. The cat being my greatest supporter!
The French say, “bon courage", the Swiss wished me all the best (invariably “good times”), but what should we wish most?
I'm trying to be outstanding in the "could've copped it" club,
I'd go and bake some biscuits, but we can't fix this with grub,
I'll write about the...
Because I lived in Brussels for a long time and because the health care system there empowers the patient more than in the UK, when I was diagnosed one of the options I considered was going back there to be treated. The reason I did not go for it was simply practicalities - where to stay, how to deal with being away from family (I have 2 children in school here in Wales), etc.
However, comparing treatments available has thrown up some interesting things, such as low level laser therapy (LLLT) which...
I was treated for bowel cancer last year (for a total of 14 months). It entailed overall 7 months of chemo (5 weeks of this also included radio therapy) as well as surgery to both my bowel and liver. The last cycle was 4th Feb this year (2015). For the last 2 months I have REALLY been struggling with chemo brain where I genuinely feel like I am going mad!. I cannot retain any new information and generally in daily life and at work don't think I 'get it' at all anymore!. Can anyone else out there...
Me and my dad Mike clash a lot. He’s so stubborn in his old age. He’s partially deaf in one ear and it drives me crazy having to repeat myself all the time! He doesn’t have much patience, but then neither do I. He’d never admit this, but I think we are very alike.
I want to say thank you to him for looking after me when I had cancer. He already looked after my mum at home 12 years earlier and then she died. That must have been so difficult.
I felt so guilty when I was diagnosed...
I've been awake for past 3 and a half hours with my mother who is (I'm told) in the finally stages of her illness. I realise that this could continue for weeks, months or longer and this makes me feel weary.
As my mother has been awake for so long I assume that something is wrong. She's not in distress, but can not communicate so I'm finding it hard to understand what she needs. I've tried to adjust her pillows, massage her legs and she has had more to drink in the past few hours than she...
Since my last blog I have been busy trying to wrap my head around the unwrapable. The unfathomable.
I have cried enough tears to warrant my very own hydro electric dam, I might as well save the planet into the bargain eh?
I now need to put things in place that mean I have a lasting legacy for our children and for A.
Following posting my last blog post an amazing thing has happened. I posted it in a group that I have been in on Facebook since I had the boys. A sling group. Full of ladies who carry their...
15.6.15 Start to a new week and I've been making plans. From my first blog you may remember I have been suffering from mobility problems following radiotherapy to my spine. I am just starting the second week from the treatment and still have a weak left leg so I'll be asking about this at my appointment with the oncologist today. I really think some physio sessions will help. I've been resting loads but getting outside and moving about yesterday seemed to improve my confidence and I was doing much...
