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Hi all,
So I am writing this blog in the hope that it will help others going through anal cancer like myself!
I am 43 yrs old and female. I have been diagnosed with early squamous cell carcinoma (SCC) of the anal canal i started treatment on the 22nd May 2017 and I want to share the daily experiance I go through to help answer some questions. I am also taking part in a
clinical trial that will see me do 1 week less of chemo/ radio so 4.5 weeks instead of 5.5 weeks.
So I will start...
Having been denied a blood test for 10 days due to Barts (Whipps Cross) poor IT security resulting in their meltdown, i have now had to cancell my consultant visit, after all, they cant talk to me about my 'progress' if there are no statistics to talk about!
The inability of anyone to pull thier finger out and find non tech solutions (oh the good old days of pen and paper) has been incredibly frustrating!
When the first thing you hear on the telephone is "We cant answer emails" ...
This weekend has been full of ups and downs really.
I was invited out to the theatre with friends on Friday, but unfortunately had to cancel as there was no way my spasming body could sit in a theatre seat for 3 ish hours. Yup, spasms are new. lol. They were bad on Friday, with it feeling like someone had plugged my back into the mains for a few seconds, which even made me cry out with the shock and pain. I'd have laughed if it hadn't have hurt. lol. Some of the noises I made were really quite funny...
I’m messing up the space-time continuum of my blog to jump ahead to the previous couple of weeks instead of sticking to the current linear pattern of my posts. I am aware that I haven’t written in a while and the main reason is that very thing Rihanna sings about: –
No. This is not an error. Yes. This is the version I wish you to see. Go forth and Elmo.
I’ve been back in the office I work in for what seems like forever but I think is only just a month. The universe seems to have...
You might laugh, but it's true! I think the radiation has indeed mutated me - finally - but stillno signs of super powers, unless they've yet to develop.
So, I used to always be too hot. It didn't matter what the weather was doing, or where I was, I was always toasty warm. Snowing? Perfect temp for walking around in a short sleeved top. I even went to the ice bar in Oslo a few years ago, and was too warm and needed to remove the coat thing they have you put on. My worst nightmare was a...
Hi All,
I am at work this morning before going off for an ECG (pre-chemo) this afternoon and in the midst of all the chaos, I received the call giving me the date of my first chemo - it's Tuesday 30th May.
I had this sudden need to cry once I'd put down the phone and I want to dash off for a weekend in France for the Bank Holiday - one last hurrah! perhaps before life changes for a while. We have a friend's 50th to attend on the Saturday evening but I really don't feel in party mode....
Not sure what the date is and what difference does it really make anyway?
So continuing with the theme of being honest, today has been much like yesterday as far as scores on the happiness scale goes.
A big fat zero.
I got up this morning after falling down the stairs in the night at my daughters ( didn't put the light on because I didn't want to wake anyone up) and my toe was all bruised and swollen, I couldn't walk on it so I put ice on it and hoped it'd get better. Fat chance of...
Tuesday 16th May 2017.
What a horrible horrible day. I'm going to write exactly how I feel right now....I feel totally let down, I feel like I can't trust anybody. That's how I feel.
Today I had an appointment at the hospital, I thought it would be about my up and coming radiotherapy, the planning and arrangements for that. How wrong was I...
I did think it strange that I had two appointments come through and this one wasn't for the hospital where the radiotherapy will...
Sod's Law! Made plans to go and sit in a garden on Friday and it was overcast and drizzling. Then Saturday and Sunday? Bright glorious sunshine.
I still went though, and took Stinkbug with me. He absolutely loved it! Had his little purple jacket on, attached the lead to it, and then pottered around for about an hour and a half. I live in a terraced street with very small gardens at only one side of the street. So the only wildlife he gets to see are a few starlings, a few pigeons, a couple of...
This week’s blog post is going to be brief as what I am writing about was a very brief encounter.
Oh, good grief Charlie Brown! No! Not that type of brief encounter.
Two weeks after diagnosis I met the consultant who was going to be my consultant and who got to have the immense privilege of being the one that removed bits out of me.
At this point I had been bounced between two hospitals like a tennis ball – Frimley Park Hospital and Royal Surrey County Hospital. At Frimley I had my colposcopy...
