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Hi all
Today I had to go for my usual weekly visit for platelets - normally this is a Wednesday but I am going to Western General in Edinburgh tomorrow as I am starting a trial. I now have to get 'washed plateletes' as just before New Year I took a reaction to ordinary platelets - in that I felt my ears start to tingle and was itchy all over - within seconds my ears had swollen up (I looked like Dumbo) and I had this horrible itchy rash all over - I could also feel my face and lips start to swell...
Well had my quarterly visit to Western and an older BCR-ABL test came back, the counts are doubling every 3 months. She raised concerns and had more tests done. Got a letter in the post, bcr-abl counts on the rise. How strange is that, having been on glivac for 7 years, and a higher dose over the last 2 years, surely it should come down? Had major panic and imagined all sorts of horrors, and bizarrely started with all sorts of unusual side effects, including a rather large tummy, I look pregnant. Thankfully...
Yesterday Bert slept all day , in fact he has been sleeping most of the time since Saturday. but he awoke a little aggressive again,so had to be sedated again. Today he woke with a temp and his catheter was blocked so he was in agony. after yet more morphine as he threatened to start throwing things about I have noticed that that aggression gets much worse when he is in pain, They took the catheter out for a while and he managed to go without the pain. But he is asleep again. We are still hoping...
My dearest maureen it is 6 months today 9 febuary that you were taken from me it only seems like yesterday that you and i were together, i miss you terribly my darling evenings are very lonly without you i think about the weekends when we used to go out and vist places, every day you are with me in my thoughts, one day we will be together again God bless you my darling i love you always forever. your loving Husband Rick.
Hi
I am Val. My husband, Ron, was diagnosed with mesothelomia at the end of Nov just days after his 61st birthday. We currently live in France and I thought that as well as recording my feelings and fears it might be of interest to others to know how the French system differs from the NHS. It is a good service and waiting times are virtually unknown but I am not sure that I would rate it at no 1 in the world as some publications would have you believe. It is also not free.If you are affiliated to...
3 days ago i was told that my mum only had weeks to live .
It started with a fall in her bathroom gashing her arm on the 7th of November , she could not get down stairs to phone me for 7 hours , we got there broke in and got her a ambulence .
I had the feeling she had had a stroke but Doctor was more concerned that she had broke her foot or Arm , x-rays done and she was sent home with us .
Still not happy on the monday phoned her doctor he was not available so Dr Bud came out i said to him had...
Joe has been in the Severn Hospice at Shrewsbury for 11 days now. For anyone reading this blog who has any misgivings about hospices please read on. The Hospice is fantastic, full of warm and welcoming people who truely care. The support we have received over the last few days has really strengthened both our bodies and minds to fight this bloody terrible disease. Sadly Joes pain is still an issue, he had a CT scan on friday to try and determine what is going on. He had a really bad night on friday...
my mam passed away thursday at twenty past four, i was in the room with her as she took her last breath, needless to say i feel like my heart has been taken away my mam was my best friend and i love her loads, thankfully she was in no pain and we all got to spend time with her. really cant get my head around why god would take my mam away from me at 6 yrs of age, im engaged and suspossed to be planning my wedding but cant imagine my mammy not being with me picking my dress and on my big day, life...
