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After what seemed like the longest week of my life,the wait was finally over and i walked into the clinic to see the consultant.First of all I was checked out by the registrar who wanted to know if the drain had had stopped draining ,it hadnt so they said it would have to stay in for at least another week.At this stage it was the least of my worries and i was impatient to see the consultant.
The consultant finally came in.once again he said how sorry he was,but he reitterated that he was sure that...
my sister keeps tellin us im ok im ok dont worry she pretends shes alrite cos she doesnt want us fallin apart i am fallaing apart my sister is dying i cant help i cant take this from her i swear to god i wish i could pls god spare my sister
So I've had my planning CT scan. Went by train from Warwick to Birmingham as this is the trip I will have to do during the treatment. Not too bad. A bit of walking between stations. Hopefully will be able to have my treatment and still do the school run in the morning and afternoon, so hoping to get a lunchtime appointment slot.
Got changed into my gown, which will be mine for the next 3 weeks. and then taken in for my scan.
A radiographer sat down with me and went over how long my radiotherapy...
From doctors discussing my illness over and over again, between Birmingham and the Marsden, they have finally made a decision on how to treat my melanoma tumours. I have 2 tumours at present, one behind my breastbone, which is growing and very painfull, and one below my right kidney. The plan of attack is to use radiotherapy for 3 weeks on my breastbone tumour, then an operation on my kidney tumour. So start radiotherapy next Tuesday (23/02/10) for three weeks. Hopefully keeping a diary will help...
it has been a week since dads funeral still dont know how i feel it will be 4 weeks monday we lost him, funeral was nice we had theme tune from only fools and horses and vicar of dibley as thease were dads fav tv programs he wasnt really in to music as such and has luck would have it the boat he was captain of(oil rig stanby vessel) docked that day and was sailing that night so all dads flowers went on the boat to sea which was nice he loved he sea been out there for 52 years since he was 14.Life...
Well, this is my first sick week off work ever, when I haven't felt tired from treatment or been unwell. My white blood cell and neutrophil counts were low on Monday, so I couldn't start my 2nd cycle of treatment and because my immunity was low, it was best to avoid too many contacts. I settled down to watch daytime TV, always having thought I was missing something by being at work. Wrong!!! I did join this web site, having thought about it for some weeks, so that was something positive. Pottering...
just an update, went for the broncospy yesterday, but they were unable to get biopsies just the wash and scrape, I was in too much distress, so they are going to give me a general on Tuesday, its going to be a loooong weekend, but what are we all here for is waiting and living, and hoping.
Saw the consultant with Mum and Dad, all seems quite positve.
OK so they cannot cure this horrible disease but they are thinking that the tumour has traits of a carcinoma which is not typical of small cell. Carcinoma is good in my opinion as it may buy us time with my lovely Dad. We have to wait for the scans to be done after this bout of chemo to be more sure but hey I am happy to go with that prognosis at the moment! ;-)
Hi all
Was back at the Western Gerneral in Edinburgh on Tuesday and I have 'the pills' I am not starting them until next Tuesday as husband is night shift this week and was worried in case I took a bad reaction and he was not here to take me to hospital. I have looked at them and they look harmless - just small white capsules - hard to imagine the poison that is inside this little capsule. I have a vision of myself taking one and ending up like one of Agatha Christie's victims - grabbing...
So off i go to the hospital bright and early on a Monday morning.I had the op done,I was in the operating room for 6 hours which was quite a bit longer than it was supposed to be but i was just grateful that it was over.I was told that i would have tubes coming from everywhere after the op so I decided that I didnt want the kids to see me like that so I they didnt come to see me till the next day(I thought i looked ok by this point but a few weeks later they told me i looked like one of the Simpsons...
