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Fownd owt today that the rt I hav been havin on my back to tayk away the presha has worked and the presha is much less and my spiynal cord is no longa been compressed. Good news.
Also, my consultant thinks he can get me referred to St Barts to start the process of asking for gamma treetment. He says they will want me for shaw as i am one of a kind
He also wants me to think abowt chemo. He thinks it will help the groin tumas, and tayk them down. But I am not shaw bowt chemo, the one he wans to giv...
Well after a vist to the hosp Doc last week we have learnt that Alan's T13 of his spine is collapsing due to a soft tissue mass .
So we now wait to see if he has to go to Orthopaedic Hosp or to see about RT again .He may have to have a Biopsy done..
so as always its the waiting game, to know where we go from here.
Hoping and praying things will get sorted re treatment for him .
Nanaboo
Promise this one will be short enough that oxygen is not required but in return you have to do something at the end ha ha... (suspense eh?? that might keep you going to the end... ooh what could it be.... ah ah... I know your type... no sneaky scrolling down!!! )
So, having spent the weekend with my head in the metaphorical sand and lovely it was too...and can just about breathe again... tomorrow is Monday (yeah, I know you know that) and next week is a biggy and no mistake so...
It feels a bit like the...
i find the general blogs site very supportive sad funny and informative but my specific cancer site for myeloma slumbers some what. not that you want to hear of others having holes in their bones leaking calcium all over the shop but when it is on your mind it is nice to share the fun. thanks to all who contribute at first i thought i was to well to need this site and now my mind is most at ease when these little builders fingers are hammering at the keys. inspired with replies back to others from...
Thought you all needed cheering up after yesterday and was worrying about you lot feeling angry etc for me....After reading all your wonderful comments and nearly wanting to cry from being so touched by all your kind words and even status updates and pms etc etc..... when some of you are so much worse off than me.... yet you still take time to wish me love etc...so...
I decide that I am not called Little My for nothing and WILL NOT let the b*st*rds grind me down and next week is next week so no point...
i have not written a blog before i am feelin very low and fed up. i just want me lovely dad back - i miss him every day, there is not a moment that goes by when i dont think about him.
it has been 16weeks today since the time came when he shut his eyes and went to sleep, i remember it like it was yesterday, i was sat with him holding his hand.
i know people tell me he is better off where he is now and he is not in any pain but i am, my heart is aching, i am feeling very alone even though i have...
I hav waykd today wiv payn I can deel wiv. It dus not hert lots + lots wich is such a releef. It still herts but that kind of payn i can tayk, I hav had no extra payn killas so far, jus wot I am ment to hav.
My new plan of acshon is to proov thees doctas rong. they say my legs will not wawk...but i can wiggal my tows!!! So today I will moov my feet and mayk them darnse!
Feels beta to be in a hosp I hav been in befor. I prefer it heer, I mooved hosp yesterday. Still need to get sumwair wiv the gamma...
And lo the gods looked down on earth... and what they saw was good....
and behold... they saw Little My taking heed of her friends ' advice fand trying to take it easy.....
Little My sayeth unto the gods... b*gger off solicitors and cats and work and life stuff... I will take heed of the great prophets Madge and Nanny b and their disciples too numerous to mention and taketh the cancer seriously and will relax and recuperate today...
And lo the gods looketh down on Little My relaxing and sayeth unto...
I haven't been on for a few weeks because my dad died on 4th July.
5 weeks ago tonight my mum was called in by the doctor to say that my dad had fluid on his lungs and around his heart and that he wasn't likely to last the weekend. Luckily he got through the weekend and we managed to get him moved to Ty Olwen Hospice on the Tuesday. He was there nearly a week. I can't say enough about the amazing staff at the Hospice. They made my dad's last few days really comfortable and made my mum...
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