Blogs

Latest blog updates

• Wittering away...

  Rowan8a3264 1 hour ago
• To Hop-on or Hop-off is the question?

  Mr U 6 hours ago
• time for a cuppa....

  hugs 22 hours ago
• Speaking to an empty room

  RedTree26 1 day ago
• "It's Only Skin Cancer"

  A cautionary tale of personal experience and common misconception

  dolphin99 2 days ago
• My Mengioma Brain Tumour Story

  GaryG298207 2 days ago
• Looking after Mr. B

  Miranda t 6 days ago
• Today my coffee tastes like Christmas in Costa Rica

  Beesuit 6 days ago
• My BCG Therapy

  Aurelius 7 days ago
• Pedalling through this journey

  Former Member 8 days ago

Latest blog posts

• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Christmas

  My stomach is not too bad now. Had a got sleep as I was so tired. Anyway Happy Christmas  all x

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Few days after 2nd dose

  Nausea really, through the night, so unsettled sleep and poorer appetite; feeling a bit better on third day but tired

  W J over 2 years ago
• Dignity Pants and other misnomers

  Ding, Ding, Round Four

  Ding, Ding, Round Four I started three months of Chemotherapy on Monday 18th September 2023. It is now Thursday 7th December. And the last day of scheduled poison pills and the start of a proper detox. Well, truth be known I am actually now over 24 ...

  Dignahtee over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Dose 2

  21 Dec 2023 starting my second dose tonight, delayed a couple of days as my anti biotic course hadn’t finished. 

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Dec 2023

  Dec 2023 first dose is ok so far. But I’ve had a cold so was worried about infection, went to GP for blood s and they came back fine ( infection and platelets etc). Had antibiotics and just about out of my Cold. So bloods next in a week and the...

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Change of chemo

  5 tablets of 40mg dose and then 6 week repeat. I’ll probably feel it 3 weeks in. I’ll let you know. It’s three weeks (when it’s meant to kick in)and no change in my self (usual tiredness and slight headache) bloods next in thr...

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  New chemo

  Slight growth based on drs meetings from my last MRI. So changing to just CCNU treatment. 1 tab every six weeks Hope someone finds this helpful 7th Nov 2023 Started my Lomustine last night with one antisickness. Woke up feeling no...

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Oct 2023

  It’s now Oct 2023 I’ve had my third MRI now and the halo of the tumour has grown but very slightly. I’ll have my blood test for the next chemo (temozolomide) 280mg a day for five days

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Diagnosis

  it was diagnosed as a grade 3 strocytoma cdkn2a/2b

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Operation Jan 2023

  So due to strikes and having a kidney stone 5mm and rushed surgery early december. I had my tumour out in jan 2023. Unfortunately only 60% was removed and it was diagnosed as a grade 3 strocytoma cdkn2a/2b. I have had radio therapy and am now on chem...

  W J over 2 years ago