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I saw my consultant on monday to talk about my treatment which will start sept 10th so the waiting is over at least,had to have another bone marrow sample as previous one hadnt been enough so they wanted more! ouch didnt hurt quite as much as last one so perhaps im getting used to it not.
so looking forward to my first treatment of R-CVP and to hopefully feeling abit better than i am now.
Pete.
I went to see my doctor at the local cancer hospital, I have now been told that the surgery I had has managed to remove all the melanoma I had and the scan did not show any further cells floating around.........He has asked me to go onto the Avastin study, of which I will do, I have been told that I have a very high chance of this melanoma will come back.......... but if any one has information I can read about it, I would be greatful.....I will try to keep thhis blog going, but , like diaries.....
OMG the past 2 days have been rough. i feel fine till i stand up then my legs go weak and i almost black out. took me 15 mins to make a cuppa this morning which was cold when i finished making it. got to get some brekkie to take my tablets...thats gonna be interesting!!! lol. ill be better tomorrow... i hope. sue
"Everything's fine and we don't need to see you for 3 months". Nice.
xx
Today was again a very difficult day for me and Val's family as we attended her funeral at the local crematorium. The reality has finally begun to sink in that this is no longer a bad dream from which I and all concerned will awake to find beloved Val there by my side and still laughing at life as she always did.
Having spent the dark days since her death on Monday 16th 2010, mostly in tears and wishing that I too could pass over, so I could be by her side in heaven, I inwardly made a resolution...
Friday August 20th 2010
So here's the full low-down on my day in hospital. It's a bit endless, but it's meant to give those who come after the full monte - I'm not forcing you to read it, lol.
I wasn't particularly nervous about going in - I was just so desperate to get the procedure done, I seemed to have been waiting for ever, and I felt, rightly or wrongly, that the delays might be exposing me to unnecessary risks. Also I became paranoid that I would get some cold or flu that...
I was disappointed to receive a phone call from the chemo clinic yesterday, cancelling my chemo session today due to very low neutrophils. They were supposed to ring today with a new appointment for next week but no word yet. I know this is a common reason why treatment is delayed but it was the last chemo in cycle 2 and it was supposed to be done and dusted with a break to look forward to next week and then a consultant appointment and on with cycle 3. I think when you look at your chemo schedule...
I have good news for a change
My youngest sons girlfriend is 3 months pregnant and we are over the moon about it
It seems like years since we have had something great to look forward to
its a little bit of Paul living on isnt it ?
cant wait
fingers crossed all goes well
love Sue
I'm very glad to be more than half way through (this phase of) treatment now. Getting some side effects, but finding the medication (for anti-nausea and anti-diarrhoea) works. I guess I'll be getting more sore and more tired as time goes on but afternoon kips help. (No daytime sleep today though and S got me up at half six this morning.... amazing I'm awake to type now really).
I am still managing to get some work done - and happy to be doing it too. I'd rather stay involved doing something...
Some of my favorite things that he said to me over chat.
i want to tlk to u and hold u hand and pick ur mind apart and i want to learn what drives u crazy and what u like and dis like and i want to mamerize the lines for ur face and the way u smile and the way u giggle and laugh and the way ur eyes look when ur happy or sad the linse and curves of ur body and the smell of ur hair and the smell of ur skin and the taste of ur lips and skin the feel of ur touch ur smooth skin under my fingertips
tu sei...
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