Blogs

Latest blog updates

• Today my coffee tastes like Christmas in Costa Rica

  Beesuit 30 minutes ago
• To Hop-on or Hop-off is the question?

  Mr U 7 hours ago
• Prostate Cancer Recurrence - Triple Therapy

  excavator 19 hours ago
• Community News

  This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.

  Emma - Online Community Team 22 hours ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  W J 1 day ago
• Cool Cap Relief

  TerryB 4 days ago
• Living with Desdemona

  Desdemona 5 days ago
• One Step At A Time

  Phild26 6 days ago
• Multiple Myeloma

  Tess123 17 days ago
• Mumofcancer

  Mumofcancer 24 days ago

Latest blog posts

• Community News

  Mental Health Check in

  

  It was World Mental Health Day on Sunday 10^th October. Since then, there have been many conversations about our mental health. The Community is a place for these conversations to continue alongside being a source of support.

  Our Mental health and wellbeing are just as important as our physical health, so we should take the time to understand how we are feeling, and how we can look after ourselves.

  “Sorry about my long post, it's made me feel a little better to actually type this all out though and...

  Megan- Online Community Team over 5 years ago
• Tongue and throat . A bit of an issue

  Update or Star date 17/10 - a bit more news

  OK All, A quick update, pre-assessment and MRI over. Pre-assessment was standing on a set up scales, a bit lighter than expected but worry does have that impact. Swab up my nose and either side of a sensitive area in my pants for MRSA, height check (...

  Former Member over 5 years ago
• New Haw Saint Bladder Cancer journey

  FINAL POST & TIMELINE (17 September 2020)

  Can you believe it was 3 months ago this week that I had my operation? I know it was because I was back at Charing Cross hospital yesterday and today for my first set of follow up scans.I then had a consultation this afternoon with my lead surgeon to...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  THANKS (31 July 2020)

  Although my bladder cancer journey will continue forever (in the short term getting used to my Neobladder and in the long term quarterly, bi-annually and then annual scans), I wanted to draw a line under this blog.The first entry was on 7th June and ...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  20 DAYS ON (29 July 2020)

  It’s been 20 days since I’ve been taking it easy and waiting for the next hospital appointment which was today.Time has been spent building strength and following my routine of the 6 hourly bladder flushes, and of course taking it easy. B...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  USING NEO (31 July 2020)

  Was back in hospital on 30 July to begin using my Neobladder. For the record my Neo was constructed using 60cm of my small intestine. Sounds a lot, but we have about 7 meters of small intestine and my bowel function, which could have been affected, s...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  TAKING IT EASY (9 July 2020)

  Just back from another trip to Charing Cross hospital but this time for a scheduled check up with my urology nurse and one of the two surgeons who operated on me. Two little steps forward to normality. Firstly, the pressure pad that covered the wound...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  HOME – AGAIN (1 July 2020)

  Being hitched up to the IV machine for 6.5 hours a day for the last week has done the job and wife brought me home last night. Bladder flushes are back to every 6 hours, so without hospital noise and light, plus only 1 bag to worry about and being to...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  STILL IN CHARING CROSS (29 June 2020)

  Sunday night was my 5th night in hospital after the problem with my drain bag filling with urine.That’s a night more than I was in after the operation.However, it is much easier being in hospital when you are feeling well, especially as I can g...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  FRUSTRATION (26 June 2020)

  This post is being typed from my hospital bed on Friday 26 June which is 11 days post-op, and I’m here because during my short time back at home I was not cleaning the new bladder correctly. Yesterday I spoke to the same nurse who had said he w...

  Chasam over 5 years ago