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Haematology appointment was today. Bert has been having double vision for a while along with a personality change. I had my suspicion's confirmed. The Leukaemia has spread to his brain. He refuses to discuss anything with the Dr's so it is left to me. I decided that I did not want an MRI of his brain as there is nothing they can do about it anyway. They have given him a trial of steroids to see if that will make things any easier for him we will know fairly soon if it does.
Love Teri
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Hi all,
feeling a bit naughty sneaky this is while hubby is in the shower but I feel that I shouldn't be sharing all my thoughts with the world even though many of those reading are in similiar or much much situations than ours.
Anyway, we got to day 7 of the Sutent before it took it's toll on DH and he has been unable to go work today. Getting up at 5am is hard enough (so I've been told) when you are healthy so I can only imagaine how it's been for him to get himself up while on the treatment...
Well yesterday i got my results of an mri they did last week the good news is the tumour has shrunk and it hasn't spread but the infected lymph nodes have not shrunk or changed as much as hoped or would have liked, so i have to go for chemo on Monday as planned, as she said another lot won't do any harm while we wait to decide what to do.
She told me she didn't think the surgeons would operate with the lymph nodes being the way they are but she will put my case forward at the mdt meeting...
i only have cancer in my neck and no where else! thank god. i have two more chemo then switch to radio (hope its not radio 1) im going to beat this so i can get back to boxersize asap. thanks to my friends for their help and kind words.
Have blogged on here only a few times really just giving updates on my nephew's cancer fight. He is currently in remission from synovial sarcoma and doing really well. Yesterday my father was diagnosed with prostate cancer. Contained (hopefully) but a 9 on the gleason scale so aggressive. We are all in a state of shock that cancer is, once again, invading the family. The last 18 months have been extremely difficult for Mum and Dad who had to see their darling grandson (12 years old today) go...
Well as you can all see sleep seems to be evading me tonite, feel a lot better that I have been the past week so thats a big bonus, hair falling away at a great rate of speed so it will be off to the hairdressers tomorrow and have the lot shaved off, its been like owing a shaggy dog...hairs everywhere.
Think I can do this now, just need to get back to full strength ready for the next round of chemo on Monday but at least I know what to expect this time.
Think Ill go any do that bit of ironing thats...
Over the next few years the NHS is going to have to save significant amounts of money in some areas, even in the provision of cancer services, in order to cover the increasing costs of health care. They are working on ideas of how to increase the cost effectiveness of the services they provide but keep the quality of care patients receive as high as possible. At Macmillan we are committed to make sure that quality of the care people receive gets better and want to make sure NHS does not just cut services...
I apologise to anyone about to read this, I just need to put it down in writing really and thought where better then here.
In October I was told that my dad had prostate cancer with secondary bone cancer, and everything changed. I'n not here to write about my dad, he is doing ok and to be honest its a little to painful to write about without crying and as im currently sitting at work maybe not such a good idea.
One thing i have found though is my total lack of interest in things, Im 23 and...
Tell me your good or bad experiences... this is a minor problem in the bigger scheme of things. I'm with Aviva through Tesco life insurance. I was advised by call-centre staff I must be diagnosed as terminally ill (within 12 months) and there must be at least 18 months remaining on the policy. My oncologist is unwilling to co-operate with claim submission at this time, because he wants to know how I respond to treatment. Fair enough.
If I don't get a critical illness claim pay-out there are still...
Seven years later, a second tumour has sprung up in my temporal lobe. Radiotherapy preparation begins next Tuesday... anyone been through or going through this, please get in touch. Doc is vague re prognosis with or without this treatment, but he is keen to get started.
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