Hi all,
feeling a bit naughty sneaky this is while hubby is in the shower but I feel that I shouldn't be sharing all my thoughts with the world even though many of those reading are in similiar or much much situations than ours.
Anyway, we got to day 7 of the Sutent before it took it's toll on DH and he has been unable to go work today. Getting up at 5am is hard enough (so I've been told) when you are healthy so I can only imagaine how it's been for him to get himself up while on the treatment. I left DH in bed and went to work, when I spoke to him later he said he wasn't sure if this was the tablets or flu because he just ached and felt shattered, it does seem a little early for the tablets but then he is on his third course so I guess you have a bit more in your system each time so the side effects will start earlier. His shoulder has really been hurting him as well and any change in position sitting down or lying really hurts him yet they said that the tumour hasn't changed?
On the plus side we have decided to go to Mexico as soon as the next round finishes and DH has been scanned. We are splashing out on a fab hotel and premium seats, I'm a munchkin so I don't need the extra leg room but the free drinks will go down nicely and it's something we've never splurged on before so as we are assuming this will be our last holiday abroad we are pushing the boat out.
I did email the Prof's secretary on Monday double checking that we are OK to go even though the other doctor said it was fine. I also asked about how to get a Macmillan nurse as I don't get to speak to anyone professional on my own and in the same way DH may have things he wants to say without me hearing as I always go with him to his appointments, anyway it's Wednesday night and I'm still waiting for a response!
Been convinced to watch some alien thing now. Big hugs to everyone and keep smiling. :-) xxx
